No change today, except I've saved his life, lol. I told them I thought he had metal pins in his chest so maybe an MRI was a no no. They rang Sheffield to check and that's the second, but most important, piece of information they didn't pass on. First was the allergy to the contrast on CT scan. Luckily Ralph was on the ball and mimed he wanted to write and he told them. Again rang Sheffield last night and confirmed it. So pleased Ralph was listening what they were going to do.He's had a chilled day today, they're still deciding about the botox, the consultants are meeting with their big boss later today. They've all said it's the only thing holding him back, he's so strong with everything else.
Good news is as they've moved him out of the isolation room he has decent WiFi on his tablet and can get BBC iPlayer, lol
Shocking! Haven’t been contacted by my GP since op and they didn’t action my discharge letter until I chased them. I know they’re stretched but anyone who is confused post op has no chance
It's because currently the systems do not 'talk' to each other. I had the same thing with a Latex allergy. You have to be on the ball with these things, only snag is you are usually not feeling well so quite likely to miss it. I logged my Latex incident as a 'near miss' with the hospital.
hi Sue thanks for the update :)slow and sure progress so good news He is lucky to have you looking after him but remember to look after yourself as well. There's loads of stuff on i player to past the time for him xxx
Wow, that's just as well you're both on the ball! Glad to hear things are stable at the moment and also that there's now better WiFi. Entertainment is important!
Phew both narrow escapes . Proves you needed to know your own medical history and what you can have and can't have . It's not just lack of communication between hospitals but between different departments within the same hospital that can cause serious problems. Ralph will be happier with having wi fi . And seeing him happier helps you . As worry for a loved one had a knock on effect on your own physical and mental health. And you tend to neglect yourself because of worry about them . Please take good care of yourself and make sure you rest and have healthy food and plenty to drink non alcoholic . Don't want you to think you should get drunk 🤦😁. All the best to you both.
So glad you have eachother. I don't drink either. Only had 3 sips of champagne since 1988 when my neurological condition got worse. That's 2 weddings my children's and my mother in law's 90th birthday. Unfortunately my fit healthy husband died in 2004 aged 47 I was 45 and born disabled. But I was very lucky we found eachother when I was 16 he was 18. And my disability never phased him even when my health got worse when our children where 4 and 6 months. He just said we alter our life to suit you. Spent lot of years in a wheelchair as it was easy when we went out until the children where older but used a stick since I was 29. Nick had wheelchair rage anyone cut in front of me he went for them and hit them . Did say I already had our son on my lap didn't want anyone else. Love like grief never dies and to me I am still married and always will be .
It's the price we pay for finding the other half of ourselves to make a whole . And loving and being loved so much in return . But I am lucky I had Nick for 29 years married 22. Some people live their whole lives and never find their other half or know such love.
this situation is very common unfortunately and happened to us on many occasions. My husband used to drive me crazy with his iPad, lol. I would be with him all day at the hospital and then he would be whattsapping me all night, lol. I hate MRI when you know you have metal inside and they say oh that’s fine it’s been in over 5 yrs it will be fine. So pleased he is stable and improving now let’s hope their meeting brings up some good ideas to hurry him along a bit as sounds he is ready xx. Have you bought him and Easter egg for when he gets home ?
I spoke to a friend last night and 3 years ago it happened to her then 16 yo daughter after a leg operation in Sheffield. They missed vital information in her notes when she transferred to Chesterfield
What a worry that the hand over was so poor. Thank goodness you were there and Ralph was alert. I really hope they can sort out the tracheotomy soon. Hope he's enjoying iplayer. 😊
Sounds really encouraging news. Worrying that such important information wasn’t passed on though . Good thing Ralph and yourself were on the ball. I received a letter recently from cardiologist which was a copy of what was sent to surgery Gp and several dates in it were out by a year. I sent email to cardiology department and they sent another letter asking Gp. to change to correct dates. Otherwise this would have been on my notes. Hope things continue to improve and Botox really helps x
And the battle continues...but that also shows some lack of communication and negligence on the part od the medical teams treating him..well done you..and him...now we know he will get through this..
Shocking goings on! Glad they got their act together and all is well. Hope this last stage of recovery goes well and good to hear Ralph is more comfortable. He should be home just in time for the warmer weather, and some healing sunshine and fresh air.
You've been a lifesaver in more ways than one for him since he's been ill.It's not just the medical care it's the love you have for each other that has caused this miracle.
Oh wow that was so lucky you mentioned the metal. Really bad that Sheffield didn't pass on important information. It does show how alert he is now and understanding things. Good job he was listening.
After posting my reply this morning I reflected on how I deal with the lack of communications between the GP systems and the Primary Care/Acute Trusts. I am in no way associated with this product but I use 'Medical ID' (free version) which is downloaded to my phone. This has helped me in multiple situations but first a little about the App. It's really straight forward, you can log/list your 'conditions (of which I have many), the medications you take, any allergies & reactions and any medical notes i.e. NHS Number, contact details NOK etc. So how have I used it. Firstly when the Paramedics came to my house and started asking background question I just opened the App and gave them the phone. I'm not going to be at my best at remembering important things when I was bad enough to get them out to me. They thought it was a fantastic idea. Secondly when I was being admitted for the Balloon Angiogram on my legs, the poor nurse was trying to get the number of medications/dosage etc from me. I just gave her the phone, (nothing missed, everything logged) but most importantly when I was taken into have the Coronary Angiogram and they were just about to put the puncture into my Groin I was able to show them that it was not a good idea as I had an Aneurism in the same location. As a result of that they went in via my wrist instead. So in conclusion, there are loads of different Apps that do the same job but to have that information to hand, on your phone or tablet is in my view a life saver.
Well done always speak up re MRIs I had brain surgery mid 1970s and no one knew about metal plates & clips well after 50 years why would they! but I was referred for one despite me telling then about the metal etc the Imaging consultant phoned me after I had told them again about it really nice but his opinion was that I wouldn't like the outcome and really it wouldn't do anything for his expensive machine either!! His advice was if they don't know keep telling them & under no circumstances let them put you in an imaging machine. A CT scan will probably be ok though.
Ralph sounds like he's really on the ball. Glad he's got some reasonable TV to while away the time. As for missing information that can cause major problems, my hubby's notes clearly stated he couldn't have codeine or morphine and I even made sure I told the hospital.
He was put on codeine and morphine a day after his quad bypass and was climbing the walls, hallucinating. He was in a right state. The error was found after I 'stormed out' of the HDU and had words with whoever would listen to me!!!
I hope you're doing OK. You're both in my thoughts every day.
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He is lucky to have you looking after him but remember to look after yourself as well. There's loads of stuff on i player to past the time for him xxx
Okay so far
My husband is AMAZING!
