pace maker: I’m due to have a ICD... - British Heart Fou...

British Heart Foundation

54,646 members34,205 posts

pace maker

colin_neal profile image
36 Replies

I’m due to have a ICD/Pacemaker fitted on Friday 3rd February has anyone got any info or advice about the procedure Iam feeling quite anxious at the moment

Written by
colin_neal profile image
colin_neal
To view profiles and participate in discussions please or .
Read more about...
36 Replies

Dear Colin_neal

A warm welcome to the forum, I hope that it will help you with support and knowledge as it has me and many others.

Pacemakers, well you would have already been through loads of tests already for them to have got you this far and the recommendation of having a Pacemaker fitted, this is something that is not taken lightly and you would have had to reach all the required levels to be offered one.

Believe me you have gone through worse just getting to this point, you will be amazed how tight knit the Cath-lab team is and how smoothly you will pass along the conveyor belt of their day.

You can ask questions at anytime or remain quite and contemplating or any mixture of the both, you will be well looked after and each stage will be explained to you.

You will be given excellent medication that will help you relax and after a little pushing and pulling it will be all over.

You will be in the ward with one of the most incredible invention now apart of you, technicians will tell you all about it and set your Pacemaker up to your own personal settings.

Good luck with your fitting and please come back to tell us how it all went for you.

Mine not only saved my life but it continues to as I type this.

colin_neal profile image
colin_neal in reply to

thank you

BB99 profile image
BB99

I had a bit of an issue during insertion of my device but I think it has helped me immensely for the past several years. The technicians at my local hospital know exactly what is happening to me every day.

colin_neal profile image
colin_neal in reply toBB99

thank you

Valentino1XXX profile image
Valentino1XXX in reply tocolin_neal

You are Most Welcome Colin.Regards

Michelle

RufusScamp profile image
RufusScamp

I had one fitted 3 years ago. It was no problem. The staff chatted with me all the way through, and I was home that evening. I accepted a sedative when it was offered, because I am rather nervous about such things, but I probably didn't need it.

You just have to be careful about lifting the arm for a few days, and you can't drive for a while, depending on what sort of device you have fitted.

I would recommend thinking about what clothes you take, that you can get your arm into easily.

It really is nothing to worry about, and will help you in the future. These days, there are remote monitors, so you don't have to go back as often to have it checked.

Best of uck - let us know how you get on.

Stanley18 profile image
Stanley18

Hi Colin

Please join our Pacemaker UK Facebook group if you’re not already a member. You’ll receive a warm welcome and lots of good advice from hundreds if not thousands of fellow pacers.

Good luck on Friday.. The day that I received my pacemaker was the day that I started to bounce back. I live a full life again because of it.

Last March, I walked into the theatre at 3.20 and was home sat on my sofa by 7.45. It is an amazing invention and has changed my life. Every single one of the cardio team before, during and after have been incredibly.

Yes there is a bit of discomfort during the procedure but it is worth it all the way.

colin_neal profile image
colin_neal in reply to

thank you

BeeBee79 profile image
BeeBee79

Hi Colin,

I had mine fitted under sedation and whilst there was a bit of pushing and pulling, there is no pain. You can always ask for more pain relief and the sedation comes through again and you will be drifting off elsewhere :)

To be honest, the worst part was trying to sleep afterwards. I would invest in a v-cushion ahead of time to help you sleep on your back as it took a good few weeks for me to be able to sleep on my side and even now, 6 months on, if I spent too long on my left side it aches. Coincidentally, the day of your op is 6 months to the day I got mine fitted and I can drive again.

I hope everything goes well, I’m sure it will ❤️

colin_neal profile image
colin_neal in reply toBeeBee79

thank you for the reassurance it really helps

Homebhoy profile image
Homebhoy

I had an ICD implant in September 2022. The procedure only took about 40 minutes and I was back home later that afternoon.

The initial few weeks are the hardest as you are very much aware of a foreign object being in your body, but after a while I no longer think about it.

I am more or less back to normal and have done some quite physical work with no problems.

Jsst give yourself time and follow the advice and I am sure all will be well.

colin_neal profile image
colin_neal in reply toHomebhoy

thank you

Valentino1XXX profile image
Valentino1XXX

Good Morning Colin.I am due to have an ICD Implementation and my stunts blocked I am so scared.

With you all the way.

Regards. Michelle

colin_neal profile image
colin_neal in reply toValentino1XXX

thank you

Nannysue1 profile image
Nannysue1

Hello. I had mine fitted end of September last year. You should be careful not to lift your left arm above shoulder level for 6 weeks, that's the hard part. Choose clothing that allows for this. I had mine at midday and was home by 6pm. The Cath lab staff were amazing as have been the pacemaker clinic. I'm the most nervous patient ever but found the whole proceedure fine. I also had an AV node ablation 6 weeks later and am now 100% dependent on my pm but the AF symptoms have gone ( although I'm still in AF) and life has improved dramatically for me. My heart beats regularly at 70bpm, its bliss. Good luck with yours.

colin_neal profile image
colin_neal in reply toNannysue1

thank you

Beatle45 profile image
Beatle45 in reply toNannysue1

Can I ask how you are still in AF but your symptoms have gone ? I’m asking as I am having tests at the moment but I don’t know much about it all.

Nannysue1 profile image
Nannysue1 in reply toBeatle45

Although the AV node is ablate, you continue to fibulate but the pacemaker takes over and controls the rate. I'm sure there is someone on here who can explain this better and more technically. If you're just starting your AF journey, its unlikely that this will be for you, at least for some time, as it's a last resort but for me, it's been a wonderful success.

Beatle45 profile image
Beatle45 in reply toNannysue1

Thank you for that.

Qualipop profile image
Qualipop

My friend's 88 year old husband had one fitted last year with no problems at all. He was home the same day ; had about a week of slight soreness where it was inserted. He has a monitor by his bed that does a check without him even knowing. If there's ever a problem the team phones him or he has immediate contact with them if he's worried about anything. APart from horrible stomach problems from his anticoagulant tablets he's been so much better.

colin_neal profile image
colin_neal in reply toQualipop

thank you

Classof1988 profile image
Classof1988

Colin, do not worry about the procedure as it well established and less painful than a trip to the dentist!

As others on the site have already said basically the only pain you will feel is the mild discomfort of the surgeon pressing down on your chest as they insert the device.

You will be introduced to the operating team who will explain the procedure then will be given local anaesthetic to numb the area. You will be awake and alert during the procedure - my surgeon was curious as to why I was in his hospital as I no longer lived in the area, and so I filled him in on my journey. We talked normally to each other while he worked.

After the procedure you will be able to rest (depending on the time you may have an overnight stay), once home you will just need to rest your arm to allow time for the wires linked to the battery to settle and become a normal part of your body. I found a cushion or pillow under my arm at night assisted, and I slept well without any real discomfort.

Again, dependant on your circumstances and previous history (did you ever pass out while awaiting surgery) you may be back driving a week after the op, that week allows everything to settle down.

You will then have a post op check at around four weeks and will have an annual check up to ensure the pacemaker is working well and to confirm the status of the battery - this takes around 10-20 mins if that and the test involves resting a monitor over your shoulder. This is totally painless and you get your results there and then.

colin_neal profile image
colin_neal

thank you so much

EMBoy profile image
EMBoy

Hi Colin,

All I can do is reiterate what everyone else has said, and wish you all the best. Not only will it save your life, it will give you a much better quality of life.

colin_neal profile image
colin_neal in reply toEMBoy

thank you

Faub profile image
Faub

Hello, I obviously don't know your story and your symptoms, but for me my pacemaker was my blessing. After my avr in October 2021 I ha done fitted literally two days later because of total heart block (my atria and ventricles would not sync) and I literally could not live and function without it as my heartrate would be all over the place.

The procedure is fairly smooth, about 1.5 hours, and the cath lab is more like an actual lab than an operating theatre. You'll drift off and wake up as a bionic man.

My scar still occasionally bothers me as it is right above my clavicle bone. But you get used to it

Good luck!!

Fabio

colin_neal profile image
colin_neal in reply toFaub

thank you

daveshop profile image
daveshop

Hi Colin I've had my pacemaker about 2 years now as you can see by the comments hear it a great invention I wasn't to happy about having one when my heart didn't get back into rythum after having a new value fitted but as people say a bit uncomfortable for a while but I hardly think about it now just greatful I have one and iam able to carry on with my life good luck mate

colin_neal profile image
colin_neal in reply todaveshop

thank you

Bingo88 profile image
Bingo88

I had a Pacemaker 3 years ago and not good with operations. But it was nothing to worry about. I didn't want sedation to be drowsy. I either wanted to be awake or asleep. The procedure took 90 minutes and was less traumatic than going to the dentist. Felt no pain at all. Just pressure and tugging of getting everything in place. Let's us know how it goes for you. Brian

colin_neal profile image
colin_neal in reply toBingo88

thanks will do

Sanpedro2019 profile image
Sanpedro2019

I had mine fitted today .It went very well All the staff were Great ,ihad a icd fitted in 2019,this us a joint icd / Passmaker .A little painfully now but will keep you inlope

colin_neal profile image
colin_neal in reply toSanpedro2019

thank you

Flyfishy profile image
Flyfishy

Hi, had mine fitted 4 weeks ago. It was an experience but ok. The drugs you get take away the anxiety and the staff are the best. It will be fine and you are going to be yourself again. Best wishes.

colin_neal profile image
colin_neal

thank you

Not what you're looking for?

You may also like...

Pace maker

Hi I have just been told, out of the blue, that I am in for a pacemaker on 28 th May. Am terrified,...

Pace maker experience

Hi All New to the community. I had a pace maker implant on Tuesday for 2nd degree heart block. I...
JP1146 profile image

Angina Post pace maker

Hi everyone. Not having a great time. Pace maker fitted for intermittent 2nd degree heart block...
JP1146 profile image

Pace maker implant for heart block. Expectations?

I have suffered with increasing breathlessness when exercising for the past two years or so....
JP1146 profile image

Pace Maker for 88 year old with demetia?

Hello new here so if this topic has been covered apologies. My 88 year old father has been in a...

Moderation team

See all
HUModerator profile image
HUModeratorAdministrator
Luke_BHF profile image
Luke_BHFPartner
Amy-BHF profile image
Amy-BHFPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.