ablate and pace: has anyone had the... - British Heart Fou...

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ablate and pace

Bjw49 profile image
15 Replies

has anyone had the joint procedures where the pacemaker then becomes the driver of the heart?

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Bjw49
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15 Replies
Hanibil profile image
Hanibil

Cardiologist suggested I have it done, went to see an expert on the matter he advised me not to have ablation done as I would be relying entirely on the pacemaker he said if the pacemaker failed for any reason I would die. He explained that if my pacemaker failed and I hadn’t had the ablation my heart was working enough for me to go to hospital to get sorted. So I refused the ablation. But I suppose it depends on the health of your heart.

Hylda2 profile image
Hylda2

I have had both done. I have been left with an e f of 35 so if anything happens I have enough hr left to get to a hospital

Buddy00 profile image
Buddy00 in reply to Hylda2

Surely the EF is only happening because your heart is beating. If you are solely dependent on your pacemaker to initiate your heartbeat and your pacemaker fails then your heart stops beating .

Hylda2 profile image
Hylda2

Pacemaker set to beat between 50 and 120.

Husband has total heart block. If his stopped he would die.

D

Nomis21 profile image
Nomis21

53 pacemaker dependant after pace and ablate, total heart block.Never really thought what would happen if my pacemaker failed?

Hylda2 profile image
Hylda2 in reply to Nomis21

Husban’s heart stopped on table as they were inserting pm, but it had been expected

Nomis21 profile image
Nomis21 in reply to Hylda2

So if mine stopped/failed, would it be lights out? Not worried as I know it would be very very unlikely just curious, but also want to know how a upgrade from my current 2 lead PM to a 3 lead CRT pacemaker is carried out when like me have total heart block as this is the plan for me.Guessing they have to unplug, remove one to insert and connect the other so at some point the heart is going to be disconnected from pacing?

Hylda2 profile image
Hylda2 in reply to Nomis21

Sorry, all I know is what husband was told about his. He’s 80 and otherwise very healthy

paintbook profile image
paintbook

I have had the pacemaker part done and waiting for the AV node Ablation; but I would dearly love to hear some positive comments on this procedure, as I am very apprehensive about it all, so would like to know something hopeful,

Hylda2 profile image
Hylda2 in reply to paintbook

I am told that I am now 100% in AF but because of the AV node ablation, can’t feel a thing! 🤸🏻‍♂️

Bjw49 profile image
Bjw49 in reply to paintbook

Yes that’s my position but due to have ablation next week 🥴

paintbook profile image
paintbook in reply to Bjw49

Thank you for your replies, they have been helpful. I was due to have a CRT_P , but on the day I had a two lead pacemaker fitted ( don't know why) so does that affect the AV node ablation?

Deejay62 profile image
Deejay62

I had a pace and ablate done around 13 yrs now. I assume I have total heart block and depend solely on the pacemaker. I had a pacemaker fitted first (CRT-P) then I had an AVnode ablation. I was a bit unsure because once it’s been ablated it’s gone forever. I read on line people saying after that ablation you can only live for 5 years. I was fearful, but I went ahead because of arrhythmias coming out of it therefore ablations became dangerous, also I was in heart failure because of arrhythmias and dilated cardiomyopathy. Having my AVnode gone is the least of my problems.

All the best.

Nomis21 profile image
Nomis21 in reply to Deejay62

So does pace n ablate reduce life expectancy? Any evidence on this? I'm also in HF and permanent AF, struggle everyday since pace n ablate with ongoing health issues.

Deejay62 profile image
Deejay62 in reply to Nomis21

Not a question for me because all the things wrong with my heart I just thank God I’m still here. We are all different and maybe even have different reasons why we need pace an ablate. I can only give my story and like I said 13 yrs and I’m still here after having it. Without it who knows. The arrhythmia I had was slowing down my heart and it was even more annoying than Afib I have now.

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