Transplant update : Morning fellow... - British Heart Fou...

British Heart Foundation

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Transplant update

Thanksnhs
Thanksnhs

Morning fellow hearties, just a quick update, they had been investigating recurring urine infection, scanned bladder and kidneys, nothing too sinister thank goodness, small cyst on kidney nothing to worry about at the moment, bladder fine, I have been referred to urologist to see if they can find out why the infections keep recurring, echo scan new heart looking great, no problems at all, they have now reduced the steroids, might get rid of the beard 🧔 🙈now! And hopefully the headaches, and also halved one of the immusupprestants, I also met one of my fellow transplant patients a young man of 27 his wife was expecting their first baby when we were in, every day I wished for a new heart for him, which he got and all is well, he is now the proud father of his own little Prince, Louis, a beautiful smiling baby, I can't stop smiling myself, two new lives in the middle of a pandemic, the future looks so much brighter today, wishing you all well, stay safe char ❤️❤️x

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What a wonderful and uplifting post. Keep the beard, they are really trendy at the moment. Glad to hear your doing ok Char

Trimmer for Christmas hehe 🤣 I was just so happy to see him as I had been thinking about him and his wife, what a stressful time they had, I was so happy everything had worked out for them both, they definitely have a Christmas to celebrate, char

Thanks for sharing ♥️👏👌👍

Morning Char, great post this morning so pleased to read your results ever onwards. Reducing your drugs positive news. Lovely story about the young family, makes you feel good. Good old Jubilee.

Take really good care Pauline

Thanksnhs
Thanksnhs in reply to 080311

I am still smiling ☺ he is a different man such a weight off his shoulders, glad they have decided to try and reduce the meds, back this Monday to see if all is ok, char

080311
080311 in reply to Thanksnhs

Went and had my repeat bloods done yesterday at the health centre clinic, as I said, they were cleaning like you wouldn’t believe. Whenever someone left their chair to go in with the nurse someone came and cleaned the chair down. Kept cleaning door handles and the sanitises were being wiped all the time. Felt very safe though they were running late so didn’t like that I was sitting with people coming and going. Pauline

Thanksnhs
Thanksnhs in reply to 080311

Great to hear that everything is being done to minimise infection, two of my healthy friends have just tested positive they said they are feeling awful, it doesn't seem to be getting any better, I hope all your bloods are fine, I got loads done yesterday they were like vampires 😂take care char

080311
080311 in reply to Thanksnhs

Sorry about your friends hopefully they will have a mild case though you said they feel awful! Will get my results at the end of the week, just hope they don’t mess with my meds to much! I know what you say about vampires one of mine said blood count was down not surprising, with the amount taken over the past week! Have you ever heard “The Blood Donor “ with Tony Hancock? Just thinking about it makes me laugh 😂

Thanksnhs
Thanksnhs in reply to 080311

😀Not heard but will check it out, char x

080311
080311 in reply to Thanksnhs

Try and find it on line it will make you laugh especially with the amount of blood they have drawn 😉

Handel
Handel in reply to 080311

😂😂 Superb xx

Great update, thank-you! And lovely to hear the news about the young family.

Thank you for your lovely uplifting post. Glad to hear that your recovery is progressing well.

Thank you, I am still smiling, the best clinic visit I have had, what a difference in the guy he is a picture of happiness and made everyone else the same, I hope you are keeping well at the moment char

What an amazing post, thanks so much for this update 🙂. Makes me realise we can never take our beating heart for granted.

Thanksnhs
Thanksnhs in reply to TRST

Thank you, it's been a scary journey, it's great to get good news at the clinic and I am still smiling about the baby news char

Hi, just wondered if you’ve tried taking D-Mannose for your urinary tract infection. It’s a type of sugar that has hooks that grab ecoli bacteria and drag it out with them when you wee. I’ve used it several times and had the blessing of a urinary consultant I saw. In fact, he said it was wonderful stuff and it was a shame it’s classed as a supplement because that means it’s not available on prescription. You can buy it in high street chemists, health food shops (like the one that has the penny sale every so often) and online too.

Good luck in getting sorted out. X

Thanksnhs
Thanksnhs in reply to Shar28

Thank you for your reply, I haven't heard of it but I will check it out just now, I worry constantly about them coming back in case the infection goes to my new heart, and taking antibiotics all the time isn't good either char

Thanksnhs
Thanksnhs in reply to Shar28

Hi again, can I ask what strength you took, thanks char

I can second the use of D mannose, it cured my recurrent urine infections, which the medics denied were even there. I buy it in powder form online, it is much purer and cheaper than tablets. Just mix a teaspoon with water up to four times a day to get rid of an infection. You can also take a small maintenance dose to keep the bladder healthy. As with all supplements, you should check first with your consultant if you are on medications.

Hi, thanks I am definitely going to order it, even before my heart diagnosis I was always susceptible to them, it's just so much more serious now, I hate to keep taking antibiotics char

Hi Shar28 So glad you posted this I too have had urinary infections for a number of years, I seem to be getting them more often now, they cause me a lot of discomfort. I will give this stuff a bash, thank you. stay safe, Ruth

It’s 1000mg per tablet and the dose is 1to 3 tablets up to 6x a day at 3 hour intervals.

Thanksnhs
Thanksnhs in reply to Shar28

Thank you I am going to order it just now, I am sure I have another one starting x

Have you tried Cranberry juice. I've read it could help with urinary infections?

What a wonderful post about the young man and baby even though it made me cry. X

It was so heart warming to speak to him and see his beautiful pictures, I am still smiling and crying myself x

Aww thanks for that uplifting update and the lovely news of your transplant friend. Thanks, indeed, to the NHS and to our donors!

Best wishes,

Thanksnhs
Thanksnhs in reply to Ads568

Thank you x

What a lovely post. Glad you're doing well but so sorry about your friends. My nephew has just been diagnosed with Covid but he's been working from home since March so don't know where that's come from!! The young family you spoke of will have the best Christmas ever. Take good care xxx

Well done bearded one glad all is going well. Look forward byo a good Xmas 🌞

Hehe fingers crossed no five o'clock shadow for santa 🎅x

Good morning, excellent news! Where did you have your operation? Lots of heart transplant patients in Harefield when I was having my AVR. You are really brave people, a new valve is not a lot by comparison. Yes miracles do happen!

Thanksnhs
Thanksnhs in reply to Tessie28

Hi it was in the golden jubilee at clydebank just outside Glasgow, it's a fantastic hospital, heart surgery is a difficult time for everyone thankfully in this country our surgeons are second to none, mine gave me a lot of confidence which helped get me through it x

what a lovely post - glad to hear you are doing well - all what you have gone through yourself still wishing others in same position doing well - thats a mighty fine heart you have - best wishes and congratulations to your fellow bed mate - Have a lovely lovely Christmas and a brilliant new year xx

Thanksnhs
Thanksnhs in reply to Flissy100

Thank you so much, I wish you the same for the festive season x

Hi Char,

So pleased to hear about your ongoing recovery. Long may it continue.

I guess there are at least 2 homes that are going to have a brilliant Christmas this year!

I hope things will keep improving, as they cut the meds down, it will be a different Christmas but hopefully we can all look forward to a better year in 21, if the vaccine works out, take care char

So lovely to hear good news, God bless you all xx

Thanksnhs
Thanksnhs in reply to 1piglet

Thank you x

Ahh Thanksnhs so glad to hear the new heart is looking great :) So hope they can get to the bottom of what's causing the infections (ouchy!!!) though, what a pain! Take care x

Thank you, I am still waiting for an appointment to see if they can find a reason for them, at the moment I am trying a supplement recommended by a couple of the ladies on this site, at the moment everything seems to have settled down, fingers crossed it stays that way, take care char x

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