Update: Hi everyone, been a good few... - British Heart Fou...

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Update

Gardenview10 profile image
56 Replies

Hi everyone, been a good few weeks since Ralph came home.He's now got his new teeth and able to eat anything.

On Wednesday he had his ENT appointment and his new trachy fitted. They will be replaced every six weeks or so. Consultant gave the okay to have the RIG removed from his tummy, so waiting for a call to arrange a date they'll come to the house to do it. They also put the camera up his nose and down into his throat and his vocal cords are now open halfway. They didn't think they'd ever open again. Consultant said he was amazed that Ralph is walking, and eating and drinking.

He gave us a different inner tube for his trachy and a cap for it and said he's happy for Ralph to try capping it at home, building up the time gradually if he doesn't have any problems with it. Said not to do it while sleeping just yet. Said it will be up to Ralph if and when he wants the trachy out altogether. Just said if he got a bad cold he may struggle breathing because cords are only half open, but he could also be fine! Said he can ask anytime if it's in six weeks or six years. So after this weekend he's going to try capping for a minute or so. We're surprised they let him do it at home alone, but any doubt and he'll just take the cap off and other tube back in. May take a while to get used to it and build up tolerance.

Onwards and upwards ❤️❤️

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Gardenview10 profile image
Gardenview10
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56 Replies
Digger0 profile image
Digger0

Brilliant news - I keep looking for your updates! So if he is capped off will he be shouting at you :) xxx

Gardenview10 profile image
Gardenview10 in reply to Digger0

He has been for weeks since he got a fenestrated tube and speaking valve 😜😂

Digger0 profile image
Digger0 in reply to Gardenview10

Brilliant - i must have missed that update :) xx

Stent2024 profile image
Stent2024

that’s great news

Spanl5 profile image
Spanl5

It really is amazing how far Ralph has progressed. So happy for you Both. x

Cassiedogoman profile image
Cassiedogoman

well thats a great update, so happy normal life has resumed for you all, really look forward to your updates

Gardenview10 profile image
Gardenview10 in reply to Cassiedogoman

He's been home almost 9 weeks and I can't believe the transformation in him.

Qualipop profile image
Qualipop

I wo uld find that really scary doing your own trachy. I'd want a nurse there the first time . I hope he doesn't try to do it too quickly but when you consider what he's achieved since he was in hospital this is all incredible news. He's such a fighter but your support must never be underestimated. How are you doing? You've been just as amazing.

Gardenview10 profile image
Gardenview10 in reply to Qualipop

He won't do more than a minute to start, if that.I'm fine, relieved that things are going well. I've even made my dental appointment next week and retinopathy check in September, when he'll be home alone for about 5 hours, unless he fancies a trip out.x

Qualipop profile image
Qualipop in reply to Gardenview10

That's great news. Look after yourself now.

Purpled profile image
Purpled

fabulous news, so now you can go and book that cruise for next year ❤️

Gardenview10 profile image
Gardenview10 in reply to Purpled

A holiday anyway, must send for brochures xx

BeKind28- profile image
BeKind28-

Hello :-)

This is just amazing Sue it really is and I am so happy for you both as a team you have got this far together and I have no doubt you will keep going and that trachy will eventually come out :-)

Thank you for such a great update for those that are struggling and think there is no hope I hope they see your post and click on all the posts you have done as you both are prove never give up :-)

Have a lovely weekend the both of you :-) x

Gardenview10 profile image
Gardenview10 in reply to BeKind28-

We can hardly believe it, but Ralph never gives up. He's now walking around the cul de sac 3 times without stopping, so he had no trouble in the hospital corridors.x😊

BeKind28- profile image
BeKind28- in reply to Gardenview10

Hello :-)

He is doing better than me :-)

Have you both considered having a belated Silver Wedding Anniversary I often think about that :-) x

Gardenview10 profile image
Gardenview10 in reply to BeKind28-

We'll do it next February on our 26th❤️

BeKind28- profile image
BeKind28- in reply to Gardenview10

Hello :-)

That sounds like a plan and I think we will all celebrate with you both if you let us :-) x

ETHEL103 profile image
ETHEL103

Excellent Sue.So pleased for you both x

Gardenview10 profile image
Gardenview10 in reply to ETHEL103

😊❤️

Cavalierrubie profile image
Cavalierrubie

👍👍👍👏👏👏👏❤️❤️❤️

Greenthorn profile image
Greenthorn

What a journey! And what strides! 🏆It's lovely to read this update!

Manderson27 profile image
Manderson27

So heartwarming to hear that he and you are doing so well after all the trauma you have been through.

Callie456 profile image
Callie456

I'm so glad to read your update! I've been feeling very low myself, have just had my mum's first anniversary. I can't believe it's a year since she passed, and I miss her so much.I enjoy hearing your updates on dear Ralph's progress and how you are getting on, it lifts my spirits. Your love and care for each other is truly wonderful and I'm very happy for both of you 💗

Valentina98 profile image
Valentina98

Brilliant news, I've been hoping to see an update from you both. Hope you are doing well as well 😌

Seal59 profile image
Seal59

Thank you for your update - it is so lovely to hear.

weepip profile image
weepip

Hi sue, thank you for taking the time to update us all.I'm so pleased he is continuing to improve and exceed the Dr's expectations it's been a long journey but you have both worked so hard to get where you are .remember to look after yourself xxx

Wooodsie profile image
Wooodsie

Blimey 😃, he is doing well. That's great news Sue, thank you for letting us know. Please give Ralph my best wishes too x

Haggishead profile image
Haggishead

hi, lovely to hear this brilliant news from you! Keep strong and just know what an inspiration you both have been to many of us on here! Please keep in touch! Big hugs to both of you. Xx

devonian186 profile image
devonian186

The good news is that I have managed to get Ralph into a local half Marathon. The bad news, you have to do it as well!

He is making great progress. I am so pleased for both of you. Did you ask whether or not his breathing is likely to be affected by humidity levels?

Gardenview10 profile image
Gardenview10 in reply to devonian186

They said not usually, but as we know, nothing about Ralph is usual 😜So sorry we can't do the half marathon, we're busy that day 😂😂

Carercmb profile image
Carercmb

Well done to the both of you. It’s amazing what you have both achieved. Your strength and love gives us all confidence in what can be achieved with the right support.

👏👏👏👏💕💕💕

Knittinggirl profile image
Knittinggirl

so pleased for you both xx

DWizza profile image
DWizza

Absolutely amazing and so good to hear such progress! Thrilled for both of you 👊🏻❤️👊🏻❤️👊🏻❤️

Larneybuds profile image
Larneybuds

Good morning....love reading your updates and anyone else following Ralph's recovery and your dedication will feel the same I would imagine. What a journey for you both but it lets people know that you can pull through from being so very poorly which perhaps gives others hope. All the best to you both xx

Bingofox007 profile image
Bingofox007

you’re both doing so well. Great to hear all the positives now. We were all there with you when it was all so intense. Still are with you and look forward to your updates. Take care 🦊xx

Aqua24 profile image
Aqua24

Sue that is absolutely brilliant news , I bet you didn't think that a few month ago that you and Ralph would be this far along , god works in mysterious ways. Roll on that Xmas Dinner for both of you that Ralph can help make and that he can now enjoy too x

Plum53 profile image
Plum53

Great to hear from you and so pleased Ralph is doing so well . Look how far he has come already. Onwards and upwards xx

grannymush profile image
grannymush

Wonderful to hear! Thank you for the update, all best wishes to you both❤️

Lovedogs1 profile image
Lovedogs1

Been following your story, sounds like he’s making excellent progress. So pleased for you both.

Murderfan58 profile image
Murderfan58

Thank you for letting us know. I can't believe how well Ralph has done especially reading your posts when he was in hospital and all the upset it caused you both .

He's like a new man but that's because he has the will power to get better but he wouldn't have that without your unending love and support. You truly are eachothers other halves and together you make a whole. Love does conquer all.

You sound happier and I hope you are feeling better healthwise and looking after yourself. Mind you bet if you don't Ralph will nag you . I am truly happy for you both . You are both inspirations that shows no matter what the will to live is strong . And the quality of life has improved for you both. 🥂🥂

Holidayescape profile image
Holidayescape

So nice to hear how Ralph is doing. He is a walking miracle. I hope you are also well.

Avagra profile image
Avagra

one word “Fantastic” xxxx

Bingo88 profile image
Bingo88

So pleased to hear he is doing so well. And it's a big relief for you as well. Have a wonderful Bank Holiday weekend. Brian

Dyllibobs profile image
Dyllibobs

That's brilliant news! What a journey it's been for you both 🥰 I love reading the updates so thank you for posting them. Sending love to you both xx

Schora1 profile image
Schora1

Love reading your updates as it’s so nice to hear some positivity and good news. Such fantastic progress being made. Wonderful!

HHH2017 profile image
HHH2017

so lovely to read this update. Ralph is obviously a fighter!!!

Trachy does take time to get used to but Im sure he'll manage with your support 😊

Wishing you both all the very best & for continued good progress.

Gardenview10 profile image
Gardenview10 in reply to HHH2017

He's used to the trachy now, but still going to try and cap it with a view to getting it removed eventually. May take a long time though, we'll see how it goes

Gillph profile image
Gillph

The steps forward are getting bigger. Well done both of you!

Fairenuff profile image
Fairenuff

just brilliant 🌟💕

Thanksnhs profile image
Thanksnhs

Hi Sue thanks for the update, it sounds like Ralph is progressing really quickly now. He has come so far since getting home from hospital he is such a strong person and being back with you I am sure has helped him no ends.That's brilliant you can start planning a wee holiday for your 26th February is not too far away.. take care Char xx

LSCE profile image
LSCE

Fabulous news.

andrea_waffle7 profile image
andrea_waffle7

What lovely news. So pleased for both of you. Sending all my love. Hope you are able to get out in your garden too. Take care. 🩷

gorillaqueen profile image
gorillaqueen

So good to hear this news 😊 best wishes to you both. Look forward to your updates ❤️X.

Silvertail profile image
Silvertail

Ralph is amazing. It's so lovely to hear he keeps on impressing his doctors. Good for you both. 💖

Cat04 profile image
Cat04

More progress 😊, great to hear ❤️ xx

GrannyE profile image
GrannyE

delighted Ralph is getting there at last.

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