Transplant update : Hi all, I haven't... - British Heart Fou...

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Transplant update

Thanksnhs profile image
18 Replies

Hi all, I haven't posted in a while but I still follow the thread every day.On the 26th of July it was the third anniversary of my transplant, always an emotional day thinking of the donor family.

When I think back over the last three years it has been quite a journey an amazing one. From lying in hospital on the urgent list during lock down with no family to visit to last week when I was in Italy with my partner having a lovely holiday. I was at my fantastic transplant hospital yesterday it's the only one in Scotland, for an echo and on return to the clinic my brilliant consultant could not keep the smile off his face as he checked the scan, every thing is bang on including blood pressure needless to say I am absolutely delighted as it's always a worry when clinic time comes along, every 6 months. I also met a fellow patient he was only 27 and he got his transplant same time as me he is doing brilliant as well he is a proud parent of two young boys now. I wish my heart hospital could help with the osteoporosis, athritis and hernia but I suppose that would be a bit greedy 😅if anyone who is listed or about to be please don't hesitate to contact me if there is anything you want to ask that I might be able to help you with. Take care char

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Thanksnhs
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18 Replies
Tos92 profile image
Tos92

So great to see such a positive post! Well done for making it through these last 3 years and showing others there is still hope for those that may need a heart transplant in their future.

Looking amazing by the way!

All the best for a continued successful and happy health journey.

Tos x

Thanksnhs profile image
Thanksnhs in reply toTos92

Thank you so much for your reply, I won't deny it it was hard at the beginning but I could not have been in better hands, my cardiology team are amazing. Char

BeKind28- profile image
BeKind28-

Hello :-)

What a great uplifting post this is and what a miracle they can do as you and the young man that had the same you bumped into are prove of that

I am so pleased it all is going so well and you look so happy and beautiful in your picture

Thank you for sharing this with us I am sure it will give much hope to others :-) x

Thanksnhs profile image
Thanksnhs in reply toBeKind28-

Thank you for your kind words, I was just so happy when I came back to clinic to see such a wide smile on his face. In the two year wait for the phone to go it was him and his team that kept me going and for that alone I am so thankful. Char

BeKind28- profile image
BeKind28- in reply toThanksnhs

Hello :-)

Sounds like a few Happy people smiling and I am so pleased for you and your Surgeon and Team who have done such a wonderful job :-) x

Thanksnhs profile image
Thanksnhs in reply toBeKind28-

Thank you x

BeKind28- profile image
BeKind28- in reply toThanksnhs

:-) x

Prestwick profile image
Prestwick

So pleased for you.

080311 profile image
080311

Hi Char,

Like you don’t post a lot these days, but I do read what is going on. WoW doesn’t time pass quickly? Can’t believe it’s been 3 years, though last Saturday it’s 7 years since my surgery! Thank goodness for the Gold Jubilee 😂

It’s so good to see you doing so well, but can understand how you feel on the anniversary, giving the gift of life to another person is the most beautiful thing.

Take good care

Pauline xxx

Thanksnhs profile image
Thanksnhs in reply to080311

Hi it's lovely to hear from you I had been wondering how you were doing, are you keeping all right at the moment. I can't believe it's been three years! when I look at the pictures I took in ICU what a difference even after the first year. When it comes to major things the NHS are brilliant but the admin and waiting lists for more routine ops really let them down. Char x

Ads568 profile image
Ads568

Hi Char,

Congratulations on your 3rd Heartiversary!! And here's to many more 🥂.

I'm at 4 & 1/2 years post transplant now, and feel exactly like you. I wasn't in hospital during lockdown, which must have been very isolating and scary, I was 130 miles from home, so family and friends weren't able to visit frequently. As you say, not an easy journey, but aren't we sooo lucky to be still here. I echo your sentiments towards our donors' families, and donors everywhere.

With very best wishes,

Ads568

1234_6 profile image
1234_6

Hi CharThank you for such a thankful and uplifting post to inspire and offer support to others awiting transplant.

And also to see such a post that should encourage others to think about and discuss how important it is to carry a donor card and to ensure family and medical staff are informed of our wishes.

I hope that it is comforting to the donor family to see that they have helped with a gift of life, and to see that you are embracing the opportunity to live life to the full.

I hope there will be many more anniversaries for you still to come.

❤️🙏

Thanksnhs profile image
Thanksnhs in reply to1234_6

Hi thank you for your reply, you are right about the donor cards, I still carry one and if there is anything that could still be of use I am sure my family will make sure that they follow my wishes. The last few years have definitely been a rollercoaster but my cardiac team have been with me every step of the way and for that I am so grateful, char

Ramilia profile image
Ramilia

So pleased for you, Char! Happy third anniversary!

I agree the Glasgow Golden Jubilee is a great hospital.

You look fabulous in your holiday photo, so is it a typo under your post where it says '64 years old'? 😀

Thanksnhs profile image
Thanksnhs in reply toRamilia

Thank you 😊, I am so glad we have a hospital like the jubilee I go every six months now, MRI Feb, Echo August but I used to be there so often it was like visiting friends and it's good to see they are still there.I am afraid the age is right but on the plus side I only have 14 months to hang on for my state pension 😅char

MummaSoap profile image
MummaSoap

What a wonderfully positive post!

So pleased to hear that you’re enjoying your new lease of life and the opportunity to catch up with someone who you met on the day of your surgery.

Such a lovely offer of support too and a gorgeous photo, it’s really inspiring!

Sending my best wishes

Soap 🧼

Thanksnhs profile image
Thanksnhs in reply toMummaSoap

Hi and thank you, I hope you are keeping all right as you are so young to have heart failure. Mine was caused by a faulty gene and I was 58 when I was diagnosed my fault entirely I ingored the symptoms for years and as it was so bad there only option was transplant. Take care char

MummaSoap profile image
MummaSoap in reply toThanksnhs

Mine was dilated cardiomyopathy triggered by my first pregnancy in 2018 but wasn’t diagnosed until January 2021 and by that point had developed into heart failure.

Overall I think it’s pretty well managed although I’ve been experiencing some symptoms recently and I’m currently waiting for an echo to check on my EF.

My dad also has DCM so the suspicion is that mine is inherited too.

Thank you for your well wishes, I hope that I will be as positive as you if I ever come to need a transplant one day; honestly I think you’re amazing and it’s lovely to read!

Best wishes

Soap 🧼

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