I had an ICD fitted 11/12 - when will... - British Heart Fou...

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I had an ICD fitted 11/12 - when will it be comfortable

standupandsmile profile image
5 Replies

Hello and Seasons Greeting to all,

My story is that I had a Cardiac Arrest 30/10 at my Judo class - ultra lucky for me, the I had effective life saving CPR given immediately, and the First Responder was on site with a defib within 15 minutes and successfully restarted my heart. 42 tough days later I was discharged from hospital. have had some major surgery (coincidental finds -so Open Heart Surgery to repair an enlarged Aorta).

I had an ICD fitted on 10/12 - i am finding "it" very uncomfortable - more so than my open heart wounds. Not pain, but very tight, very sore when touched etc

Can others who have had an ICD fitted, please comment on when I should start to feel comfortable?

I'm 52 and before 30/10 I was ultra fit and healthy (seems like a lifetime ago !!!)

Cheers

Paul

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standupandsmile
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5 Replies
MichaelJH profile image
MichaelJHHeart Star

Hello and welcome to the forum! A colleague had one fitted s few years ago. It took about two weeks to settle. I would suggest if it is still uncomfortable in another week go to see your GP to check things and make sure there is no underlying infection.

RamblingAl profile image
RamblingAl

I had an ICD fitted in October 2016 and was told that it would take 6 months before everything settled down. I had an infection in the site about a month after the op. and the worry initially was that it was rejection but fortunately antibiotics sorted it and I have had no problems since. It was probably about a year before I could steel myself to touch it. For the first 6 months I couldn't lay on my left side, but now the problem is that I forget it's there most of the time. Patience.

MissisF profile image
MissisF

Hi

Happy job is right. The Facebook ICD uk forum will help you to get a picture of the spectrum of normal for ICD implant. It’s a reassuring group just like this one . If you had it ‘under the muscle’ it’ll take much longer to feel ok. But however it was fitted its a big intrusion into your body!

My OH was also fit when he had his HA. It has taken him a long time to get used to it & at first kept saying ‘ I hate this thing’ for weeks after implantation. I think it’s partly because as a fit person you’re very in tune with your body. He’s now got used to it but it took many months. He’s back at the gym & much happier. That said, if you feel any heat or pain, do phone the hospital or go to your GP. Good Luck.

Alison_L profile image
Alison_L

Hi. I had my icd fitted in July. It took 6 to 8 weeks before it was "comfortable", and I'm still very aware of it now. We're all different - some people on here say it was fine within a few days. Lucky them!

I assume you haven't been allocated a community Heart Failure Nurse yet? (It was a couple of months before I first saw mine). In the meantime, if you have any worries, speak to the hospital - someone on the cardiac ward should be able to answer any questions. Unless you have a GP who is a cardiac specialist they are unlikely to be helpful other than to offer painkillers.

Good luck xx

Heartofsoul profile image
Heartofsoul

Hi standupandsmile

My icd was done end of August and I'd say it took a good 12 weeks before it stopped bothering me so much .that tightness was absolutely horrific sore and I found every movement pulled on it,this will ease up just be mindful of your body and rest as much as you can as it is still early days. I had a stitch that didn't dissolve then an infection just 3 weeks ago after they removed it but it's healed up nicely.it sometimes bothers me now and it's a little tender to touch but not painful. If ever I had any concerns the device clinic were always helpful over the phone.you'll get some assurance at the 6 week check and a home monitor to keep an eye on your device which is very reasurring.hope this helps as it's a scary thing to face.

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