British Heart Foundation
5,362 members3,422 posts

BHF's Community Guidelines

Our community is a place for people affected by heart disease to find support and information.

The BHF team is here to support you and answer your questions, but please remember that any specific health questions should be taken to your doctor or specialist. If you have an urgent health issue call 999 or NHS direct on 111. If you'd like to have a chat with a cardiac nurse or heart health adviser please call our Heart Helpline on 0300 330 3311, open Monday to Friday from 9am to 5pm.

When using the community, please do not:

- Post real names of the doctors or nurses treating you, or specific hospital teams.

- Post personal details of others, known both within and outside of the community

- Post anything that could be interpreted as self-publicity (including spamming – posting the same or similar message in many discussions), advertising (including pyramid selling and chain letters), selling or soliciting. If you’re discussing fundraising or events for us, feel free to add links where appropriate.

- Post anything unlawful – for example, sending or posting material that is indecent, racist or defamatory, harassing, threatening or abusive towards another community member. Please be aware that any user that posts anything of this nature may have their account restricted and will be unable to post on the community.

- Post any third-party surveys, polls or material that infringes any legal rights – for example, copyright or other proprietary rights

- Post private email addresses anywhere in the community. There’s a Private Message function, which is very useful if you’d like to talk to a member of the community on a one-to-one basis, and is a more secure way to share email addresses.

- Recommend any extreme lifestyle changes to other community members

Community tips

Privacy settings - setting your post to private will mean your post is not visible to people outside the community. It can still be picked up by Google search however the full post will not be visible. More on this here: healthunlocked.com/policies...

Using community topics - when you create a post, you can also assign it to a relevant topic. If you'd like a response from a BHF admin or nurse, tag your post as 'Ask the BHF' and someone will respond as soon as they can.

Titling posts - when creating your post, it's worth giving it a clear title that indicates what your post is about. This means you're more likely to get a response, especially if you're keen to hear from others.

We want our community to be a welcoming place, where members feel safe and supported. If you have any questions, or ideas for how we can improve the community, we’d love to hear from you!

38 Replies
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Nice to see this post. I'm living with the dreaded heart disease. I'm 39.. been 2 years now, 1 stent. People say I'm young, the way I see it is their are younger than me. Cant thank the doctors and nurse's enough for everything they do.

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Thank you for letting me be a member. I`m waiting for an operation on my heart and thought i would like to join.

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My hubby just been diagnosed with chd at 48 . He's not taking it well at all. I'm stressed he's worse.

His arteries 90%blocked !awaiting sent

Still haven't seen a consultant as it's all been so quick

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Hi Chrissy

I’m 48 too, had a stent fitted last Thursday. Only knew I had a real problem 2 weeks ago.

My wife and I were both terrified as well but I feel so much better now. I can sympathise with you but stay strong it really is a straight forward process.

Daren

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Thank you for welcome. It is myself that has heart problems. I like to read others experiences and to offer support when I can. X

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Thank you. I have just joined today. I don't feel so alone with my diagnosis, and all the baggage that comes with it.

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Welcome Bee70! It's comforting to read other posts and experiences of heart problems. Makes one feel part of a community who understand our fears

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Thank you for the welcome. I have had three heart attacks and three stents; at the moment there have been some changes in how I feel and various things are being tried so I know that should I have any queries (for reassurance) I'm in the right company.

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A lot of very helpful people here, some will have gone through similar to you and are more than happy to relay their experiences

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Please tell me if you cover the condition I have which is Peripheral Arterial Disease (PAD).

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Hi Ceed - we do indeed. You can find information on our website, as well as information about some of the research we've funded into the condition: bhf.org.uk/search/all?keywo...

Hope that helps - remember there's always our helpline if you'd like to speak to one of our cardiac nurses too: bhf.org.uk/heart-health/how...

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Sorry, I've just read these guidelines and unfortunately I did post my private email address yesterday to Numberone1 - I didn't know there was a private message option. Would you be able to remove it for me please? Numberone1 hasn't replied. How do I do it privately if I choose to. Thanks and apologies once more.

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No problem at all Margaret, it's easily done! I've removed that for you :)

If you'd like to message someone, just click their username to be taken to their profile page, and then you can click the Message button on the right hand side.

Jo

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Thank you so much. M

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Thanks for welcome I had a dual chambchamber pacemaker fitted three weeks ago due to sick sinus syndrome. I expected to feel better immediately but still not back to how I was before how long does it Take?

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Hi there - sorry to hear you're still not feeling 100%. It can sometimes take a month or two for your heart to settle and get used to a device that's interrupted its electrical activity. If you're still concerned you can ask your pacemaker clinic to check your device's setting to see if they can be tweaked to better suit you. This is painless and usually quite quick to do.

Hope this helps, Chris

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Thanks

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I had a heart attack 5 months ago and still feel terrible, jaw pains, arm pains, tight chest etc but the Drs keep telling me there's nothing wrong MRI is fine stress echo is fine. I'm terrified that the stent is blocked or failing I can't go on like this does anyone have any advise for me? could it be side effects? Ste 32.

Thanks

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Hi, found this community and hoping I get some advice.

I had a dual chamber pacemaker fitted end of August due to SSS tachy/Brady syndrome.

I expected to be 'fixed', and although the syncope episodes have stopped, I still feel very faint, palpitations , fatigue and chest pain and nausea from time to time.

I started back at the gym as was told there were no limitations now and to continue as normal.

How come I don't feel better? Is this normal? My pacemaker is set on demand, to 60bpm. I have had no advice or support since having it fitted. I tried the pacing clinic however they just said pacemaker is working fine and were of little support.

I am not on any medication. Prior to pacing Bisoprolol made symptoms worse so was stopped.

Can anyone give me any advice please?

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Thank you for allowing me into this forum. My husband has heart failure and AF. he is feeling very fatigued at the moment and so far refuses to see the Dr.

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I was due a hip replacement and had an ecg, it found there were problems and need to be referred to a cardiologist. I thought I had no symptoms and put the pains I get as indigestion and my overheating, nausea and light headedness down to my diabetes, now I’m really worried it is probably my heart. I don’t see the Cardiologist until March 16th. I’m going to be a nervous wreck by then. Do you think I have any need to worry?

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Thanks for allowing me to join. I already have the heart matters magazine its been very useful.

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Very glad to hear that, Lizziecb1! Welcome :)

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I joined in Jan. 2018 and have leaned so much. Can't wait to turn my computer on every day and read about all the helpful info about great suggestions on health problems and all the different meds people are taking. Very reassuring. Anna

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Please Help. I am trying to finish my profile but my postal code is not accepted. I live in Canada. Thanks. Anna.

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Hi Jo, a few times I've commented on posts & referred people to a closed Facebook group called pumping marvellous that is specifically for people with heart failure, their carers & family. I'm a member of the group & it's helped me considerably, but now I'm wondering if I've broken your policy rules by doing this. Can you advise? Thanks

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Hi lezzers, I dont think you have breached any rules, its always good to know of other groups out there that are useful

Thanks

Mark

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Thank you

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Hello I'm 29 years old, im waiting on open heart surgery to repair my mitral valve I'm terrified about surgery. Im praying it will be a repair and nota replacement as I'd love another child.

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Sound

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Hi Jo_BHF,

Can you explain what Ischaemic Heart Disease is please.

Thanks

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Hi there - here's some info on the BHF website all about ischaemic heart disease, which we now call coronary heart disease.

bhf.org.uk/heart-health/con...

Hope it's useful,

Jo

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Thank you for inviting me to join. I had a heart attack almost a year ago I had an emergency stent fitted.I like to read about others in the same or similar boat.

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Welcome, Pepperoreo! Hope you're doing well :)

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I had an heart attack on the 9th September,I had 6 stents put in,I feel a little breathless at the moment.

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Thanks for adding me. I think I might have joined twice by accident!

I had an MI 15months ago, also have CLL and a bad hip and knee after a RTA in 2001.

Sometimes wonder what to complain about first!

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Many thanks for the message and yes am living with congenital HD and afib with leaking heart valves. Already in receipt of the Heart Matters magazine which is very helpful. Able to cope very well with the symptoms at present and operation due last year has been suspended.

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Hello,I had an heart attack on the 9th of this month,I have had six stents put in and now feel a little breathless,is this normal?

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