Introducing our Heart Stars - British Heart Fou...

British Heart Foundation
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Introducing our Heart Stars

Jo_BHF
Jo_BHFAdministrator
12 Replies

Afternoon all,

The eagle-eyed among you may have noticed that a couple of our lovely members have a special badge on their profiles, naming them as ‘Heart Stars’ – and I wanted to let you know what that means!

We’re looking out for active members of our new community to work with us as Heart Stars, to shape the community and help us make it a warm and welcoming place for people to talk about anything related to heart disease.

Our Heart Stars will be acting as friendly faces for members - helping people navigate through the community, referring people to existing threads that might be helpful, and telling me and the rest of the BHF team what we can do to make it a better experience for everyone.

It’s all very informal and dependent on how much time they'd like to spend helping us with the community, but it should mean that we have a great team to keep our new home ticking over well.

I’m sure the Heart Stars we’ve badged-up already will say hello, but if you’d like to join their ranks and be a part of our community team, I’d love to hear from you! Feel free to drop me a private message and I’ll happily tell you more :)

Thanks everybody!

Jo

12 Replies
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Geoff51
Geoff51Heart Star

Hi I am Geoff and I was given the honour of being one of the Heart Stars on the Community. I had a Heart attack 7 years ago at work as a baker at ASDA, was whipped up to Southampton General hospital at 6 am and was up in the CCU by 9am having had Angioplasty and 2 stents. Three days later I was home and 12 weeks later I returned to full time work. I retired last October at 65 having spent a lifetime as a Baker. I have continued regular contact with the BHF since and had an article about my experiences in Heart matters magazine and this led to a permanent record on my story in one of the excellent booklets that are available to members. If I can be of any help to other member please feel free to contact me on here and I will do my best to help you.

Geoff

26 likes
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Bordercollie2

Hi Geoff, I wonder if you might be able to help. My mum has recently had two ECGs. She has also had a test where she went on a cycling machine and had a heart scan. She was contacted by the consultant, which sounded slightly bizarre. He gave her some feedback and then phoned back 5 minutes later and said after looking at your ECGs, I’m a bit concerned, I’m going to organise an angiogram. My mum received the paper work yesterday and she’s quite scared about the risks and is frightened to have it done. She is currently saying she’s not going to have it done. What would this procedure show? And what could go wrong? Thank you

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Geoff51
Geoff51Heart Star
in reply to Bordercollie2

Angiograms are uncomfortable but the results are good it tells doctors straight away if anything needs to be done and often will treat straight away with an angioplasty and stents if urgent. It saved me from permanent damage following my heart attack. Tell your Mum to go ahead it's worth it.

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skid112
skid112Heart Star

Hi, some of you will already know me. I am Mark and I too have the honour of being a Heart Star. My heart attack occurred 26th October last year, rapidly followed by quad bypass 4th November, a big hearty thank you to the Royal London and to Barts. I was home on the 9th, partly due to stubbornness. I am still slowly recovering but am back in full time work and slowly notching up the old exercise regime. My plan is to walk Hadrians Wall next year to raise funds for the BHF.

I am here partly to help others, partly to help me and partly to help knowledge grow of the enormous help the BHF and the NHS do for other heart sufferers.

Echo Geoff's last sentence, if I can be of any help then drop me a message, or stick something on the forum, usually around (wife says too much!!)

18 likes
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alheart

Hi Jo,

Is the "Heart Star" the same as being a "Braveheart" ambassador up here in Scotland? It does look very much like a similar remit

If so, could I have "Braveheart Ambassador" or "Heart Star" badge profile against my name?

Don't care that people will know that I am in Scotland,

However, I do care that I am part of a charity that caters for the whole of the UK and not just the home counties as a lot of other "national" charities do.

Please don't become one of them!

Thanks

Alastair

7 likes
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Hidden
Hidden

Hello, please kindly give me more information about joining the team of Heart Stars. I may need some informal training. I am available full time as I am on retirement and an under Cardian Rehabilitation Programme. I enjoy reading and writing as a recreational hobby since my school days. My other hobbies are walking, keeping fit, healthy diet, slimming and wellness coaching, community networking and charity volunteering

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bruceDavid

thanks for all the heart stars cheers

1 like
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Harrison4

Hi Jo how do I access this site so far I have only been able to get here via the emails sent to me

Also there is a group I sW mentioned earlier on Facebook but can’t find it now 😊👍🏴󠁧󠁢󠁷󠁬󠁳󠁿 8 weeks post ha and stent

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MyAbu

I am new to BHF and would like to learn from women as have been reading the book The Invisible Women and the gender data gap- how women are often misdiagnosed because all the data is collected from men- do you have a sub group of women?

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bantam12
bantam12
in reply to MyAbu

There are lots of women on here who have struggled to be taken seriously and to get a diagnosis and treatment, it's well documented that women are ignored and treated differently to men.

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Sunnie2day
Sunnie2day
in reply to MyAbu

Welcome to the forum!

Dunno about any sub-group here as most of the posters here on the heart pages are happy to say if they're male or female - makes it reasonably easy to note differences in experiences (if any).

I haven't read the book you mention - I'm currently reading a book one of the other ladies here posted about and am finding it a very helpful read indeed - A Woman's Guide to Living With Heart Disease, by Carolyn Thomas. She is an American with some rather impressive credentials (among them creator of the blog Heart Sisters, and a graduate of the Mayo Clinic WomenHeart Science and Leadership Symposium). Although a US-centric book, much of what I'm reading in it is applicable to us UK Lady Hearties, with sections specific to female heart health.

1 like
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Becksagogo

Hello. Last year I had open heart surgery during which I had an aortic valve replacement, a mitral valve repair, a tricuspid repair and a cardio-aversion. A couple of days after, I had a pacemaker fitted.

This year, in June, I had a mitral valve replacement, by TAVI.

Despite all of this surgery I am still very breathless and find things like climbing stairs and walking up inclines, lifting or pushing things nigh on impossible.

My Consultant has written to my GP advising that he has put me forward to have an Edwards in the Tricuspid ring under GA with TOE guidance.

I have scoured the internet but cant find anything that is simple enough for a layperson like me to understand. Are you able to explain so that I can ask questions at my next appointment.

I am 64 years old and it is likely that some of the problems with my heart was caused by radio therapy given almost 40 years ago to my chest area and 40 years of smoking. I have been able to get back into full time work.

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