Staphylococcus aureus.....: I have been... - Behçet's UK

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Staphylococcus aureus.....

Wendymoo profile image
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I have been diagnosed this and have it in both nostrils..its vile and the bactroban doesnt help. Does anyone else have this and what do you use etc?

Thanks

wens

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Wendymoo
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devonshiredumpling profile image
devonshiredumpling

I get it regularly because I have a hole in the septum where an ulcer ate through. I'm afraid as far as I am aware the only treatment is the bactroban :-(

Sorry old bean

Hello,

This bacteria is actually very common-- almost every person tested for it will test positive. It is usually insignificant as almost all humans will carry the bacteria on their skin, in their nose, and/or in their pharynx. However, it can become a problem in those who have suppressed immune systems and because staph can lead to more serious infections, including pneumonia and one of the major complications is its responsible for causing the antibiotic-resistant MRSA virus. It is also very highly transmittable through coughing, sneezing, etc. and therefore is easily contagious, especially to those with vulnerable immune systems. If you didn't have Behcet's, then it would be nothing to worry about, unless you noticed it causing a problem, but I would think that it should be treated to prevent any complications. But because it is so common, and you are receiving treatment, I wouldn't worry too much about it. I assume that because many of us already have this on our skin, that when our ulcers or skin lesions become infected, staph is the culprit. There are actually many different antibiotics that can help clear it up, because it is a bacteria not a virus. I have not actually been told that I have this infection, but I have had many ulcers and skin lesions/rashes become infected, so I am sure I have had it many times.

Here's a write-up on it that explains the bacteria a bit more:

news-medical.net/health/Wha...

I hope that it clears up quickly for you.

-Jenna

Hi Jenna - everything you say is absolutely correct BUT - for staph up the nose it has to be the Bactroban.

We have lots of bugs living on us - e.coli is an example - and we coexist quite happily but sometimes they get in the wrong place or we have weakened immunity then, as you say, it all goes pear shaped. Bugs that live on us wihout causing harm are called commensals.

Years ago there was a piece of research about commensals that made me laugh like a madwoman...

One day at work (operating theatre at that time) we arrived to find all the scrub dresses had disappeared and there were only pyjamas. The reason was that commensals living in the females' genital area were falling out and into the operating theatre air - and they were causing infection in patients, whose immunity was reduced due to undergoing surgery. This smog of bacteria that was supposedly floating around the theatre was known as perineal fallout. It still makes me giggle.

Hello Di,

Sorry for the misinformation about the antibiotic. I have never actually had to be treated for it, so I don't know whicch one works best for in the nostrils-- That sounds so painful what you have with a hole in your septum :( These nasty lil buggers called ulcers that we are forced to suffer with can cause so much damage to our bodies. They are beyond just a little mark on our skin. I find that doctors (who actually don't know anything about our disease) will try to belittle the ulcers and make it seem like we overreact to them-- if only they truly knew what they do to us.

I was seeing a dermatologist (I no longer believe in them as being true, compassionate, and useful doctors-- just because I've had way too many bad experiences with them) before I was diagnosed-- all along he would say that my ulcers and skin lesions were all just acne and would try prescribing me all kinds of crud for them and tell me to start scrubbing my skin better, but not pick at it. Then after I was diagnosed, I had a severe ulcer outbreak on my big toes and my family dr. told me I should go back to see the dermatologist. reluctant, but I did go-- the first thing he said to me was "hmm so you got diagnosed with behcet's? that's so strange because all you ever had wrong with you last time I saw you was bad acne"-- even after knowing what was wrong with me, he still had the nerve to call the ulcers acne. I also took offense to the way he was throwing around the word "acne" seeming like its nothing and disturbing to have because may people suffer from it and cannot clear it up. As a dermatologist you think he would be a bit more sensitive about it. I would try explaining to him the sheer amount of pain that the ulcers cause and how bad my skin hurts when its being attacked. He could not understand and would just stay quiet. And of course before he left the room, he had to get one more thing out of his big mouth, and said "you know thalidomide works great for behcet's." I laughed because he didn't even know what it was until I told him, and he claimed he had never seen a case of it before-- all of a sudden, he knew exactly what treatment works best for Behcet's. What a doop head haha.

Anyways, I had to giggle at your post, Di-- sometimes we just need a good laugh amidst the Behcet's battle :)

Hope things are going well :)

-Jenna

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