I don't know if you all remember my story. I've had issues that my Drs can't seem to explain, and am going through the ruling out everything else phase.
I had some MRIs done to rule out MS, and luckily, I have no lesions at all. So I doubt it is MS, but I guess that's not a definitive. Neurologst just kind of wrote me off since he doesn't know what is going on with me. I'm going to see if I can get a second opinion since he did discover that I have hyper reflexes and clonus, along with a positive Romberg's sign (I fall over when I stand with my feet together and eyes closed). But, since my MRI is fine of the brain, he says I'm perfectly fine! Spine shows some heriated discs and other random things he didn't bother to tell me about (but I have the report to take to my rheumy).
He also discounted my trigeminal neuralgia (cranial nerve in the face, hurts like heck!), but had no explanation for what he thought it might be.
So that was pretty much a waste of a visit, but I guess I'm glad MS is pretty much ruled out. Although, there is something wrong with my nervous system, so I would like to know what is going on, and if it's neurobehcet's.
I think i was kind of hoping for some type of diagnosis, and thinking, well, gee it can't be behcet's if I have ms! Oh silly me!
Meanwhile I've had all kinds of wonderful ulcers, tummy issues, etc, etc, etc.
I missed my rheumy appt on Monday since I was so horribly sick and had spent sunday in the ER (not my appendix thank goodness). So I have to reschedule and find out what my last round of blood tests show.
I think I'm ready to keep going on this awful train towards diagnosis. I'm getting a bit burnt out (as is my poor hubby) but I think it's important to find out if what is truly going on, right???