Anyone have fibromyalgia as well as BD - Behçet's UK

Behçet's UK

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Anyone have fibromyalgia as well as BD

sully14 profile image
9 Replies

Hi i was wondering if anyone had fibromyalgia and could be part of BD or is it part of BD.

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sully14 profile image
sully14
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9 Replies

I don't think any of us can tell you if it's part of BD exactly, but there is certainly a cross over of symptoms between BD and fibro. Some docs diagnose fibro as a separate condition, just as they do arthritis and irritable bowel for example, but some docs include them under the umbrella of BD.

andreafm profile image
andreafm

Hi sully

I was diagnosed with Behcets and Fibromyalgia in 2000 both at the same time and by the same consultant. He gave ne a research paper that showed a connection of Behcets Disease with Fibromyalgia. He classified it as a secondary condition, along with others such as Sjogrens [and others] as being prevelant in people with Behcets Disease. Other Doctors call it Arthralgia and even Chronic Fatigue Syndrome. I think it all depends on the Doctor as still some Doctors don't like the "Fibromyagia" word.

I was trying to find the paper on the internet to show but I found this in a book I have which is in a great book about behcets called Essential Guide to Behcets by Joanne Zeis. I was lucky because I also found it online at:-

books.google.co.uk/books?id...

I hope this helps

Andrea

What she said. :-)

vikkilouise profile image
vikkilouise

Hi, I have severe ME and FM, my Doc thinks I might have Behcets but I've not been to London yet to see the specialist. It's hard to know what's what as so many conditions like them all cross over,

sully14 profile image
sully14

Thanks all for your replys. Andrea that book is very good thanks all.

Jazzy21 profile image
Jazzy21

I have both but also think it may be found to be part of BD. More research is needed as I think this illness is not just a set of symptoms. People with it have different but similar symptoms.

Kedaco profile image
Kedaco

I was diagnosed with Fibromyalgia before I was diagnosed with Behcet's but never been told if the two are linked.

Kedaco profile image
Kedaco

I went to the specialist in London for the second time yesterday he said I had Fibromyalgia but I didn't have Behcet's he said my ulcers and sores wasn't the same as he seen there with patients he has with Behcet's

I was diagnosed has having Behcet's by a Rumatoligist and my Doctors and was sent to London because my flare-ups was getting more regular. So do people with Fibromyalgia have some of the systems as people with Behcet's but not as bad?

bjburger profile image
bjburger

Yes, I believe most do because this disease manifests itself as several others. The Fibro piece is more susceptible to stress and weather changes. Often I notice that first before the ulcer outbreak.

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