Question for those who have been to the London... - Behçet's UK

Behçet's UK

5,393 members4,391 posts

Question for those who have been to the London centre

vikkilouise profile image
2 Replies

Hi, I have a few questions about attending the London behcets centre, has anyone been? I was wondering how long you waited for an appointment and how long were you there for with your first appointment? Do y think there's anywhere people can lye down if they can't sit up long? Thanks

Written by
vikkilouise profile image
vikkilouise
To view profiles and participate in discussions please or .
2 Replies
tamirra profile image
tamirra

Hi Vikki, yes my daughter is under Prof Fortune, it didnt really take that long as Hammersmith hosp refered her, the 1st time you attend is a long one as you need to see many specialists, yes there is a bed you can lie on if you feel unwell, they are very nice in the clinic. If you are driving and need a car park, rather than paying stupid money to park on the rd we use the carpark which in next door to the big blue building you cant miss it its on a large piece of ground and it costs 10.00 for the whole day. Good luck on your visit. x

MrsR_75 profile image
MrsR_75

Hi, yes I got a referral via Sofia Grigoriagou at Barts really quickly. The Clinic was really well organised, waiting time was very short and there are small waiting rooms you can rest in between appointments and a place to lie down. Even after seeing 4 Professors and going next door for bloods I was only there for 2 hours. They were so knowledgeable and friendly I was totally at ease.

I only got diagnosed this year, so BD is all new to me. However, I was sat with a lady who had had it for 40+ years. She kept crying with happiness about how the London Clinic would change her life, reduce having to see multiple different consultants all over the place etc.

Hope all goes well for you.

Not what you're looking for?

You may also like...

Need advice on where to stay for London hospital visit please :) ??

Hello everyone, I'm new to the group. Have had BD for 2 years got diagnosed we I was 20. I have my...
Mlee0258 profile image

To go sick or not to go sick ...that is the question ?

Hi everybody , well here goes - I will try not to moan ... Too much :-). I'm currently under prof...
SignalBoxer profile image

Video guide to the Behçet’s Centre of Excellence

We made this video to help children and their families attending the Behçet’s Centre of Excellence...
Legomum profile image

Hia, I'm new to site and Behcet's. Been reading blogs. As it's been helpful I'm venturing a question! Anyone taken CellCept (Mycophenolate)?

I've been taking for months now but it doesn't feel like it's making a difference. Consultant says...
Godles profile image

Question for the ladies

Hi, I was just wondering if anyone's symptoms got a lot worse just before their period, I get so...
Gefm profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.