Im delighted to have found this site/forum. There is nothing like this in Irleand and no specialists in Behcetsonly only seems to be rhuematologists with an interest or know the symptoms to be able to confirm diagnosis.
I was diagnosed about 6 weeks ago after 7 months of feeling unwell. in the 7 month period had 18 tonsilitis's, 2 reactive arthritis and regular mouth Ulcers. Finally decided to get my tonsils removed as felt this was the main problem but having them removed was the catalyst to getting diagnosis. Still felt unwell after tonsilectomy and then started to get blurred vision. Got the Uveitis confirmed in the eye and allowed the diagnosis to be made.
I feel lucky to have got the diagnosis good and early and hope this might limit the severity of this disease.
I am on methatrexate and steroids to reduce inflammation in the eye. I have noticed a rise in my energy levels in the last few weeks, as have my anxiety levels, I have returned to work, have amended my diet and rest when I can. I have appointment on thursday with rheumatologist and have been hearing great things about TNF's, enbrel and Azathioprine as being better suited in the treatment of uveitis in the eye,
Has anyone any positive/negative experience of these drugs, I just want to make sure I am taking the best medication to stabuilise the vision if at all possible.
Does anyone know if they are available through the HSE in Ireland?
I would love to hear others experience of this disease/syndrome, particularly in Ireland.
Thanks for reading,