We live in the UK, England my has already suffered permenanton sight loss in his left eye and his right eye is underthreat he is only 7. Due to the severity of his condition we have managed to get him to hospital who are investigating possible causes but to date his uveitis has been deemed idiopathic. However, we have been told that despite him having sight threatening uveitis, If no underlying cause is found due to a recent NHS England decision he will not receive anti-TNF Treatment, despite it being prescribed routinely nearly everywhere else in the world and Scotland and England. I am devasted how much sight does my son, have to loose. I am terrified he will go blind. Please if you have a moment and I hate using this board for this purpose but if you feel that all people with sight threatening uveitis, regardless of the cause, please sign this petition;
change.org/p/nhs-england-ca...
It has been started by a charity called Olivia's Vision.
Thank you Rebecca