Hi, I have been suffering from bad headaches since christmas and have leisons on my brain but by neuro is not familiar with behcet's - i am the only patient he has with it! I dont feel he is taking this seriously enough and am very frustrated. i have been on sibilium, epilim, amnytriptline and asprin but I spent 4 days in hospital on iv steriods and was taken off the epilim and am now on naprosyn instead - along with the others, also on immuran. Since i came out of hospital 3 days ago i still have the headaches and my ulcers have flared up bigtime and i am exhausted when i contacted the doctor yesterday he told me to be patient i was having withdrawl to the steriods?? i feel i need a second opinion on how to manage the headaches but dont know of anyone in ireland. I would travel if i have to, i have heard of dr. kidd in london but dont know how to go about getting an appointment - do i need a referal and can i send on my scans etc and get help that way? I would really appreciate any help or info i can get!
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