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Behçet's UK
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Welcome to the Behcet's Syndrome Society community

We want you to both feel supported and support your peers in this community. The main ways to do this are via Blogs and Questions.

A blog (web + log) is a way of sharing anything you feel like writing about. From more personal things like how Behcet's affect you and your family to more objective things like the side effects of certain medications, this is a space to share and comment on what has been shared.

Questions are a little more straightforward. If you have a question about anything relating to Behcet's just ask away. This gives other community members the chance to use their experience to weigh in and provide you with answers and further insight.

That’s it. We want to support you and we want you to support each other and will do everything we can to facilitate both.

Now go blog something...

2 Replies

hi just wanted tp say that I e-mailed the Behçet's syndrome society but have had no reply, I would appreciate a response


Hi everyone I have a Definate diagnosis of behcets since 1983. When I was younger I had (have) inflammatory arthritis in both my knees and my neck, high temperature tiny boil like spots on my body, genital and mouth ulcers . Exhaustion and headaches everyday and less frequently migraines. My anxiety about the medics and my care has increased as I get older I'm now in my mid 50s .i am beginning to get problems with my liver which in part has been rectified by eliminating one of my medications but I still have some elevation in another of my blood tests . I also have some minor problems with my heart and various other underlying problems such as a at times swollen thyroid . I would love to see someone who could look at me wholistic .as I feel fobbed off because individual medics are looking at me and putting each problem in individual boxes .

I not looking to them to cure me , although that would be good but unrealistic , I just want to sit down with someone who would just talk to me and try to figure out is this due to the behcets or something else . I'm sure a lot of people who suffer with behcets would love such a person to talk to . My question is has anyone in the uk found a patient and caring consultant who specialises in behcets that I could just talk to about my increasing non specific symptoms . I'm probably asking to much but I thought it was worth shot ?? best wishes to all !


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