I only posted recently regarding cervical ulcers and joint pain etc! But just have another question regarding genital ulcers and stuff down there! Apologies in advance if this is tmi... But I don't know who else to ask whilst I wait for my next CoE appointment in a few weeks time! Went to my doc and have been referred urgently to gynecology... That's not until August!
So I've found that the last 3 times after having sex (when we eventually can when I'm not suffering with everything!), I have developed an ulcer in the exact same place the following day. I'm not sure if this is just pure coincidence that it has happened each time and in the same place. Has anyone else experienced this?
Also, has anyone else also had a deep tissue biopsy down there that is affecting things in the bedroom?! I had one in January and thing's are definitely not the same down there now... There's like a weird skin flap that has developed (possibly due to a stitch falling out I think) and it makes sex painful and uncomfortable now anyway, so it's not an enjoyable experience for me anyway now due to that! Then the ulcer appearing after as well. Makes me not want to bother doing anything, which is then starting to cause tension with my partner! He has been super understanding most of the time, but says he feels like it's ground hog day and we keep going round in circles!
Thanks again in advance. I appreciate any help and advice you all give me! X
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TigerLily42
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How frustrating for you. I have found the Bechets symptoms seem to like to recur in the same place for a few months and then dissappear and pop up somewhere else!!
I'm not sure exactly how much time you would need to properly heal. You may both just have to be patient and wait for gynecologist. May be worth phoning them and saying you would be happy to fill a cancellation spot if one comes up.
Thanks for your reply, always appreciate any answer off people. That's good to hear that your symptoms recur in one particular place for a while, then disappear and pop up else where... Hopefully they are almost done appearing on that one spot down there for me and then move on... 🤣 My mouth ulcers have been so much better the last few weeks or so and everything is happening down there instead at the moment! Frustrating, but what can you do!
Yes, I have called to see if they have anything any sooner and they said nothing at the moment, but to try again in a few days! So will keep doing that!
I'm sorry to hear about ur dilemma, I completely understand as when I do feel like having intercourse I suffer with ulsers after in the same place as b4. I have been to see my gynaecologist and there was nothing he could do for me as it was all due to my behects. So frustrating as feel like I can't do normal day to day things when can't be interment with boyfriend. I'm am now waiting to see the behects specialist to see if they can help more.
Hello, thanks for your reply and sorry to hear you are also suffering too. I have my appointment at the Behcets CoE 3 weeks today, so will see what they say about it. Then my gynecology appointment is beginning of August atm. Hoping to get one sooner if I can! It's just all very annoying and frustrating isn't it. Just want the ulcers to stop!! I hope you manage to get sorted yourself as well.
Hi, I have had reoccurring genital ulcers after sex but seem to have found a solution. Firstly, the ulcers need to heal and I would recommend using synalar ointment (your Dr can prescribe) on them until healed. Then, before sex, try using Yes VM. Any friction seems to make the ulcers reoccur but Yes VM has really helped me and I haven't had ulcers after sex since using it. You can buy it online. Hope that helps.
Hello, thanks for you reply. I have a betamethasone ointment to use on the ulcers down there, and I am also taking colchicine. The ulcers tend to go within around 5 days now because of this, then I leave it at least another week or so before we do anything. So maybe just need to leave it a little bit longer (but then my worry is if I leave it too long, more will just appear anyway! Haha) I will have a look at Yes VM - is this something you get from the doctor or can you buy it at a pharmacy? Thanks for the advice!
I have exactly the same experience, always, it is very frustrating and upsetting. I have recently discovered Yes gel and can say it has been helpful, you do not need a lot of it. A Gynaecologist asvised me to make sure I thoroughly washed myself after any sexual activity and the GP had advised to make sure I urinated as soon afterwards too.
I think that any kind of dryness makes me worse too, I had alway found rinsing after using the loo useful but makes me wonder if this has been part of the problem too.
Hope you get some answers and please share if you do.
Hello, thank you for your reply and the advice. I have actually got some Yes VM today (ordered it online), so I am going to try that and see if it helps at all. After having sex, I tend to have a quick wash and pee not long after anyway. Yes, I will keep you updated if I get any answers! Thanks again
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