Pain and stiffness in neck

[Sasha-pi]

Hi all,

For a few weeks now I am having so much pain and stiffness at the top of my neck just below my head. So much that I struggle to turn my head from side to side.

Has anyone else felt that before?

Sharing our experiences makes us more aware of changing symptons for this rare Disease.

Stay strong! ☺️

[mybehcetsxx]

Hey Sasha-pi,

Yes I had what your describing about 6 weeks back. Pain at the base of my neck, with severe headaches. I was taking cocodamol, which makes these headaches worse. Anyway the emergency doc had no idea what it was but advised me to take ibuprofen, which drastically helped. I got my eyes rechecked, my prescription had changed slightly, not sure the glasses had anything to do with it though. This is lasted around 2 weeks until I tried accupunture-amazing by the way, by the 3rd day all pain had disappeared. I do know a lot of people who have been experiencing this problem who don't have behcets too...

Anyway hoped this has helped, look after yourself x

[Lovingdragonflies]

I also have had those issues. I went through a year of severe headaches with a hot poker pain at the top of my neck working all the way down through my shoulders. I went through a bazillion tests. The concensus was basular migraines. I also had other symptoms that happened later, I started having paralysis in both legs and arms. It turned out I also had Hemiplegic migraines. Anyway, I’d see a neurologist. I take a drug called verapimil and that took that pain away. I don’t have that anymore. I still get paralysis from time to time. Unfortunately migraines won’t leave me alone. I still get them almost daily no matter what drug I try. I’ve tried them all. Behcet’s and done other issues kind of compounds migraines.