Nocturnal Migranes: Hi Everyone, I know many of... - Behçet's UK

Behçet's UK

5,234 members4,325 posts

Nocturnal Migranes

Furst profile image
5 Replies

Hi Everyone,

I know many of us suffer from severe headaches, but just wondered if any of you routinely suffer from them from late evening into the night?

I have developed a horrific routine of feeling the pain coming through from about 8pm every night and by 10.30-11 I am in agony, can't see straight and have severe photo and phono phobia. This regularly lasts into the next day, sometimes it doesn't go completely away for a week or so, peaking again every evening.

If anyone else gets this, I just wondered how you cope with it?

Thanks everyone, best wishes to you all.

Furst.

Written by
Furst profile image
Furst
To view profiles and participate in discussions please or .
Read more about...
5 Replies
Juliauk10 profile image
Juliauk10

Morning, sorry to hear of your symptoms. I have suffered regular migraines since being diagnosed but they rarely come on at a similar time of day so possibly not the same as you’re experiencing?

Hope you find some helpful information 🤗

Shari1218 profile image
Shari1218

I’m going to share what another fellow healthunlocked participant shared with me. I used to get horrible migraines and I connected it to Methotrexate. Because about an hour after doing the injection I’d get a debilitating migraine. I posted that on here and Sam told me about Imuran. I was migraine free until about last year and they came back but not related to immunosuppressant drug. But my neurologist put me on Emgality. I hate the shot but love the results! Only one migraine since last December. I wish you the luck in finding your relief!!! God speed!

tmcphers profile image
tmcphers

Hi, I have nocturnal migraines as well...as long as I catch them early onset, maxalt works well.

SCMW profile image
SCMW

I’ve woken with migraines which I believe are triggered by hormones - treated with triptans the only longer term relief I had was via Botox injections.

Frustrated2 profile image
Frustrated2

Hi I suffer from Migraines and I now take daily Magnesium Glycinate or Dr. Mercola Magnesium L-Theronate. I find both these magnesium’s have helped me. I have had 2-4 migraines in last 3 years (knock on wood)

I take 2 twice daily.

You may also like...

Is it possible to be symptom free?

painful to sleep on. I take Amitriptyline on a night but even this is not helping like it did....

SLEEP PARALYSIS AND SPDS?

episodes of Paralysis per night. Both when trying to fall asleep, and waking from sleep. Sometimes...

Stress, stomach issues, brain fog

hear if you have had similar experiences over the years and what have you found to help you... Best

Any advice for freezing cold legs and feet?

getting into a hot bed every night but even he can't believe how cold I get. Have even got...

Possible Behcets diagnosis

I have just returned from my doctors who said there is every possibility I have this Behcets. After...