Behcets plus other autoimmune condition? - Behçet's UK

Behçet's UK

5,391 members4,391 posts

Behcets plus other autoimmune condition?

Benne09 profile image
11 Replies

Hi I am just wondering does anyone here have Behcets plus any other autoimmune conditions? If so which one/ones? Am really curious

Hope you are all doing ok right now

😘

Written by
Benne09 profile image
Benne09
To view profiles and participate in discussions please or .
Read more about...
11 Replies
gammyd profile image
gammyd

I was dx with Behcet’s in ‘95. Soon after, I tested positive for Sjogren’s.

Benne09 profile image
Benne09 in reply togammyd

Thanks for responding x

LotiRamjet profile image
LotiRamjet in reply togammyd

Me too -

Lettie999 profile image
Lettie999

I have behcets, relapsing polychondritus (affects cartilage) and APS (sticky blood).

Benne09 profile image
Benne09 in reply toLettie999

Thanks for responding x

debs1963 profile image
debs1963

I gave behcetes

rooser1 profile image
rooser1

hi there- I had neuro behcets symptoms starting at 17 (meningitis) coupled with progressively more and more sensitive sucrose intolerance. While I wont super say that the sucrose intolerance is autoimmune, I am 100% convinced that the two are related, as they popped up together.

any hoo- when i got dx with behcets officially at 25, I was probably in the beginnings of my newest autoimmune disease now, pernicious anemia, as theBW suggests it then but wasnt diagnosed until 31. (im about to be 32 now).

so behcets, sucrose intolerance, pernicious anemia, seems like every 5 years i get a new card which makes me less worried about the old cards LOL

RuthieN profile image
RuthieN

Yes my daughter has Oral Facial Granulomatosis, hypermobillity syndrome

lesleyg profile image
lesleyg

Hi I have Behçet’s and pyoderma gangrenosum (PG) which is apparently also very rare. A couple of dermatologists diagnosed the PG on the same day. The lesions I get have a bright pink ring around them.

SCMW profile image
SCMW

Hi, yes it’s very common for them to co exist. For me FMS and Behcets, my mother IGA vasculitis and undifferentiated connective tissue disease. Potentially APS or Hughes Syndrome. Best wishes

Benne09 profile image
Benne09

Thank you xx

Not what you're looking for?

You may also like...

Behcets

I'm 24 currently at university study marine biology , biodiversity and conservation. I have a year...
Rachel604 profile image

Unsure of bechets or some other autoimmune

Hi guys , am so confused . I started getting alot of mouth ulcers and one inside my nose , non on...
PS1234 profile image

Incomplete Behcets?!

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE...
TigerLily42 profile image

Hair fall/Behcets!

I am having a lot of hair fall lately. I try not to wash my hair so often, because the day I wash...
Chaitali11 profile image

Behcets and cancer.

Can you help? I was not diagnosed for years and even left my own country to seek help. I found it,...

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.