Potential Bechet's?: I am plagued by a plethora... - Behçet's UK

Behçet's UK

5,490 members4,421 posts

Potential Bechet's?

MegaNeko profile image
0 Replies

I am plagued by a plethora of various health issues and have had several diagnoses over the years but recently out of curiosity i had my DNA sequenced, this seemed to confirm several of my issues (Autism, ADD)

however as well as my mental health issues i have several physical issues including recurrent pneumothorax, episodes of uveitis and multiple ulcers/cycts (some VERY large which leave permanent "holes" in my flesh) on my groin, nipples and back of my ears mainly. i was investigated for Marfans but the results were inconclusive and put down to a general connective tissue disorder, however the DNA results seemed to show no signs of connective tissue disorders.

There were however several markers for Bechet's and given my symptoms i wondered if that may actually be the cause? further supporting this is that my sister also suffers from similar cysts/ulcers and is currently being tested due to as yet unexplainable periods of severe dizziness and vision issues, from what ive read these could also be related to Bechet's and if its potentially a genetic disorder then it would be possible that we would both be affected.

Just for other information the only other major markers listed were Chron's (my mum has it) myesthenia gravis (my grandmother had it) and Grave's (no known relatives with this) and following a lung operation i suffered nerve damage to my brachial plexus, this was put down to "Parsonage Turner Syndrome" (however i always suspected this was actually just an excuse because they messed up)

Written by
MegaNeko profile image
MegaNeko
To view profiles and participate in discussions please or .
Read more about...

Not what you're looking for?

You may also like...

Im new here and unsure of Bechet's diagnosis

Hello, my 13 year old son was recently very ill in hospital with pneumonia, and then he developed...
SanJoy1 profile image

Explaining to your GP what Behcet's is ???, Please Help.

Hello Everyone, I have been a member for over 5 years but quietly in the background. I would just...
OorWullie profile image

Great Doctor, diagnoses possibly!?

Hi everyone!! What started out as a terrible day from pain with mouth ulcers and genital ulcers...
Camp1997 profile image

I made a chart to document my BD involvement

So I'm quite nerdy and love organizing things. I have some good news, I'm on Cellcept 1500mg /day...
Miataman profile image

Suffering in silence

Hello all, My name is Emily, I’m 19 years old and I’m from the UK. I have just signed up to health...

Moderation team

TonyWT profile image
TonyWTPartner
UKADMIN profile image
UKADMINPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.