Dental treatment

[Anthony0912]

Hi all, had anyone been referred to a dental hospital for treatment? Every time I have had dental work my body reacts to the anesthetic meaning I tremor violently from head to toe, and the anaesthetic didn’t numb the gum! So they gave me more which made the problem twice as bad and still no numbness. They said we will try again another time. Half way home. My face went numb and stayed numb for 6 hours! Went back following week, again same thing, dentist was acting as though I was scared! Which I am not, never have been. I explained that I take longer to go numb so they waited half hour and it did but I was so violently tremoring that the nurse had to hold me down. My rheumatologist mentioned that perhaps I needed to see the dental hospital next time. Plus every time I have dental work I have a huge flare up in Behçet’s symptoms and usually infections. Last time I had 2 dry sockets & jaw infection was ill for 6 weeks.

Should mention I also have fibromyalgia & severe M.E with CNS involvement so pretty unwell, plus take 60mg slow release morphine, liquid morphine for breakthrough pain, gabapentin @ 3600mg max dose , naproxen 1000mg day,30mg baclofen for muscle spasms , lansoperzole 30mg.

So unsure if those meds can react with the anaesthetic? Since seeing my rheumatologist she wasn’t happy with what occurred said it sounded like I had adrenaline overload with the shaking?

Thanks 🙏

[gillianTS]

Hi Anthony0912

Gosh that sounds horrible I think I would be very put off from experiencing this again and feel sure I would want to go to the dental hospital too however this might not solve the issue because someone needs to have a clearer understanding of your reaction and the symptoms your body is left with afterwards.

I am feel sure it is possibly your other conditions that are affecting the anaesthetic numbing properties, I suffer from Ehlers Danlos and although I have not experienced what you are saying I know others who have similar experiences with the anaesthetic, I also know many people have been diagnosed with Ehlers Danlos also have Fibromyalgia. All I know from these other people is they have to have much more anaesthetic for it to work in any procedure dental or hospital.

The following links provides more details and so much on the internet both professional and personal for you to have a read of:

fibromyalgiatreating.com/an...

myalgia.com/surgery_guidanc...

I do expect your body is reacting badly with Behcet's after these episodes and this is likely to continue until someone manages you better.

Really hope you can get this resolved.

Gillian

[xandii]

Hi Anthony,

Yes! I have had the exact same reaction where my body went into quite violent shaking as soon as i got the injection in my gum to remove a tooth.

I was extremely lucky and my dentist actually used to train with Prof Fortune who runs the London C of E so she was very Behcets aware and knew straight away what the problem was although she wasnt sure if it was specifically related to Behcets or just me? Rofl

Your Rheumatologist hit the nail right on the head by saying the reaction was caused by an Adrenaline overload as from the day it happened to me, my dentist (who i have to say is the most brilliant dentist i have ever had,) swapped the type of injection she gave me to one without Adrenaline in it and i never got the problem again. It is now clearly noted on my dental records for the future and if i ever need to see another dentist who needs to give me an injection i make sure they know not to give me one with Adrenalin in it.

I believe it costs a little more than the Adrenalin one so thats why they use that instead unless there is a specific problem but since i the injections i get have been changed i have never had the problem again so i am very positive this was the culprit!

Hope this puts your mind at rest.

Take care,

X xx

[Blearyeyed]

Hi Anthony,

So sorry to hear about your issues.

I am about to go for first appointment at CoE for possible Behcets diagnosis, but your reaction rings bells for me.

I had a terrible experience many years back with a new dentist who popped in the anaesthetic then promptly tried to begin work with a drill before it worked causing me to pass out and get a broken tooth , they brought me round and sent me home and it wasn't until the drive home that my whole cheek went numb.

The regular ulcers and needing work brought on trigeminal neuralgia, infections in my jaw and gums and tons of other symptoms.

My doctor refused to treat the mouth infections and sent me to the local emergency clinic were luckily they put me on the hospital books, initially, as a anxious patient, until they realised the anaesthetic issues were real and the jaw stiffness and infections and ulcers out of my control.

I now get treated by the same dentist, who actually was the first to consider I could have an autoimmune condition and has been more proactive in his help than my GP ever has.

I have actually had my work done with general or local anaesthetic by him in hospital , I am usually given antibiotics to counter the usual flare up and infection in my mouth a few days after treatment, they also provide my mouthwashes and lidocaine .

Getting a hospital dentist or being monitored by an orthodontist is vital , especially with these reactions to anaesthesia.

There is also the possibility that your medications may be causing tremors and side effects when coupled with anaesthesia, you may find a dual appointment with an anaesthesiologist would be best as you may find that they have a way to adapt your medication or give you other medication before and after your appointment for work that will prevent the reaction and flare ups involved in dental work.

Ask your friendly dentist to refer you for that help and to the hospital as soon as you can so you can get the best treatment for your condition. I know from experience from having to wait that delays in dental work and the poor mouth health it causes mean alot more pain , ulcers and nerve issues in your mouth and face and you have enough to deal with already.

Let us all know how you get on , and especially what treatment or help you got that made things better for you, it could help us all too.