I finally got into a neurologist. I explained my pain and showed him pictures of the outbreaks I’ve been having. He has requested a MRA (there’s 2 different ones) he also referred me to a rheumatologist in the same clinic to help with the diagnosis and treatments. He’s pretty sure it’s Neuro-Bechet’s (he says it’s even rarer than Bechet’) and it’s attacking my central nervous system.
Wondering if someone suffers from this and if you have information you could share.
I have googled it and found some information but it all seems so outdated (1999-2010) .
I am reaching out for help with treatments and to see how fast you responded and felt better. I have been out of work since 11-14-17 and am worried I may lose my job over this.
It’s a helpless feeling when you can’t even wash/ blow dry or comb your hair without pain and when you have facial and eye neuropathy pain and Daily throbbing headaches you just want answers
Thank you all for responding to my other posts I really do appreciate it I have endured this pain for 28 years we’ve thought it was recurring shingles all this time, so having a really diagnosis will be a blessing even if it’s a curse autoimmune disease..
I just keep holding on to this I heard it on the radio it is what HOPE stands for:
Thank you 🙏🏻 😊