Ahead of Rare Disease Day, Eurordis have recently launched a new Rare Barometer Voices short survey (available in 23 languages) on the 2018 theme of research. The survey only takes around 5 minutes to complete! You can participate in two different ways:
1. Please spread the word about the survey throughout your network by sharing this link to the survey: ow.ly/jDu330eFt7B or the link to this press release.
The results for your country or disease will be made available to you upon request (please contact: rare.barometer@eurordis.org) to use when advocating for more rare disease research.
2. You can also participate as a patient representative! By doing so, you will help us to identify priorities in the field of rare disease research: ow.ly/jDu330eFt7B.
A LETTER TO PATIENTS WITH CHRONIC DISEASE, THOUGHTS OF A PRIMARY CARE PHYSICIAN
REPORT ON FIRST INFUSION OF REMICADE (100mg INFUSION). HERE IS WHAT IT WAS LIKE.
Video guide to the Behçet’s Centre of Excellence 
You know you have Behçet’s Disease when ...
