Log in
Behçet's UK
4,208 members3,598 posts

Rare disease survey launched by Eurordis

Ahead of Rare Disease Day, Eurordis have recently launched a new Rare Barometer Voices short survey (available in 23 languages) on the 2018 theme of research. The survey only takes around 5 minutes to complete! You can participate in two different ways:

1. Please spread the word about the survey throughout your network by sharing this link to the survey: ow.ly/jDu330eFt7B or the link to this press release.

The results for your country or disease will be made available to you upon request (please contact: rare.barometer@eurordis.org) to use when advocating for more rare disease research.

2. You can also participate as a patient representative! By doing so, you will help us to identify priorities in the field of rare disease research: ow.ly/jDu330eFt7B.

You may also like...