Bone marrow transplant for Behcet's: I'd have to... - Behçet's UK

Behçet's UK

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Bone marrow transplant for Behcet's

julietoo profile image
3 Replies

I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission."

academic.oup.com/rheumatolo...

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julietoo
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ColdNoodleSoup profile image
ColdNoodleSoup

Wow, fascinating!

NerdyChristina profile image
NerdyChristina

I keep asking for a whole new immune system...maybe someday they’ll give me one. You know you’re not doing well, when being nuked with chemo so you can hopefully accept a transplant, actually seems like a wonderful option. I would sign up tomorrow. I miss not needing 16 hours of sleep to function, waking up without tremors, actually feeling hungry and being able to eat.

Dreams.

Expectthebest profile image
Expectthebest

I sought bone marrow transplants from both university of pennsylvania hospital & Thomas Jefferson University hospital. Both did stem cell transplants on multiple sclerosis patients approx 9 years ago but neither are interested in putting auto immune disease patients into a remission that could last year's. My only guess is that financial /insurance gurus decided it's not feasible

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