Have you had trouble with your heart, lungs or stroke? What are they symptoms.

[Michja]

With all the symptoms my daughter has and medication she's on, doctors haven't explained the following symptoms for the heart, lungs and clots. I know I shouldn't think about it but it plays on my mind.

[juliebover]

I had myopericarditis which resulted in heart failure and pulmonary oedema. I've also had a pulmonary haemorrhage.

[Michja]

Thank you for your response. Was this sudden or did you have warnings prior? If so what were they? Sorry if I'm intruding please don't feel you have to reply. xx

[UKADMIN Partner Behcet's Syndrome Society]

Hi Michja, if ever your daughter develops new or worrying symptoms please do consult with her consultant or your GP. For more information on all the symptoms of Behcet's please read our various Factsheets here: behcets.org.uk/information-... Remember that not everyone with Behcet's will go on to experience all of the symptoms and areas of involvement. Good luck and best wishes.

[Michja]

Thank you. I know she may never develop the above problems but the specialists failed to explain the eye symptoms until it was nearly too late. I'm just making my self aware of the symptoms.