Hi everyone,
My 6yr old daughter has been referred to Birmingham as the rheumatologist has said she has "probable behcets". The past year has been a nightmare. She always suffered from mouth ulcers since she was about 3, but the GP did not seem concerned, then last July she got Scarlett Fever, since then all sorts of symptoms seem to have erupted, the mouth ulcers are present nearly all the time, she has headaches a lot and stomach pains that have been so bad she's been doubled over, also skin rashes and swollen joints (she also has hypermobility) and in the next few weeks is having a hearing aid fitted as she has permanent hearing loss in her left ear. She's also missed quite a lot of school due to hostpital admittance and being generally unwell.
I'm a single working mum and the stress has been immense! Thankfully my work have been very supportive, and I have a good set of friends, but I am struggling at the moment so any help would be greatly appreciated. My daughter copes amazingly well with it all , even though she is in pain a lot and has to have support at school.