Research project: Hi all, I'm a currently a... - Behçet's UK

Behçet's UK

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Research project

edies_mum82 profile image
38 Replies

Hi all, I'm a currently a student dental hygiene/therapist and also a BD sufferer. In my second year of uni I have to undertake a research project, I have chose to do it on BD and the impact it has to sufferers oral health. Would anyone be willing to complete an anonymous questionnaire on this to aide my research? Please. I really want to highlight BD to the dental care professionals as they may be the first to see the symptoms

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edies_mum82 profile image
edies_mum82
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38 Replies
jzeis profile image
jzeis

I'm happy to do it!

edies_mum82 profile image
edies_mum82 in reply to jzeis

Excellent thank you! I will pop the link up to it (can be done online) or I can email it over to people. Whichever is best for you

Millington profile image
Millington

I'm more than happy to as well :)

kattm profile image
kattm

I'm quite happy to help you. The more we can raise awareness the better. x

nicholls profile image
nicholls

would like to help

billi profile image
billi

Hi I don't mind would you email please.

Billi

Meep profile image
Meep

I'm more than willing

crohnie2000 profile image
crohnie2000

I'm also happy to do it :)

don5766 profile image
don5766

I would be more than happy to! X

edies_mum82 profile image
edies_mum82

Thank you so much everyone! If you could send me your emails I will send the questionnaire over to you all ASAP! I am also writing an article for the BD society newsletter including the questionnaire, just in case you see it!

Meggy7791 profile image
Meggy7791

I'm happy to do this - anything that helps.

shazzbat88 profile image
shazzbat88

Happy to help shazzbat88@hotmail.com

felle profile image
felle

Yes i would like to do it,be so good for others to understand.

Dexter01 profile image
Dexter01

I will have no problem completing, just let me know how. Mouth ulcers have ruled my nearly all my lifexx

nanajana profile image
nanajana

I am happy to help. simeonswitzer@juno.com

Duvet profile image
Duvet

I am more than happy to help,

It is fantastic that you are doing your research project about Behcets Disease.

Clare x

suzannenmike profile image
suzannenmike

I am quite happy to help you.

Suzanne x

Nana2four profile image
Nana2four

Sure, I would be happy to answer a questionaire concerning the effects of Behcet's on oral hygiene. I believe that Behcet's can cause many more problems than just the painful, horrible ulcers we all relate to. I'm willing to help if this could increase dentists awareness and understanding of this disease.

My email, bettyowens1978@yahoo.com

kdgh profile image
kdgh

Yes, thank u! Kfun31@gmail.com

Lil46 profile image
Lil46

I would be happy to complete your questionnaire if I'm not too late.

edies_mum82 profile image
edies_mum82

Thank you so much to everyone so far! There is no deadline as such, I have to submit my research by the end of October! The more people that take part the better really, thank you again!

I will get the emails out ASAP, I haven't sent any yet as I'm having a flare myself and trying to get through the bank holiday weekend with my 3 year old and BD as you all know is difficult 🙈

nicholls profile image
nicholls

Shazann54@hotmail.com

Rivbeans profile image
Rivbeans

I would love to help! Not keen on putting my email public so could you post the link online? Or message it to me? Thanks

edies_mum82 profile image
edies_mum82 in reply to Rivbeans

Hi that's ok, I have posted the link in the post itself now, but here it is too:

svy.mk/1QhGZlY

edies_mum82 profile image
edies_mum82

Hi everyone I have got authorisation to send my questionnaire out so here is the link...

svy.mk/1QhGZlY

Thank you in advance

Meep profile image
Meep

Done!

Legomum profile image
Legomum

Happy to complete. Could you send a load of questionnaires to the Centres of excellence to see if they will be happy to distribute them on their clinic days? Patients usually have time there in between seeing different doctors in clinic. I am sure the more responses the better ( though more work for you to analyse!)

good luck

edies_mum82 profile image
edies_mum82 in reply to Legomum

I approached the centre of excellence unfortunately the hospitals procedure for things like this is not that straight forward so it would take months to be able to get the questionnaires into the hospitals :-(

CrystalAngel1 profile image
CrystalAngel1

Hi, I haven't been on here for a few days and am just catching up, I'd be willing to help. I'm grateful for you raising awareness of BD in the dental profession. X

djmilton profile image
djmilton

Hi, if you are still needing volunteers to do this I'd be happy to contribute.

Thanks Steven x

edies_mum82 profile image
edies_mum82 in reply to djmilton

Hi Steven, yes please the more responses I can get the better evidence I have for my research! The link is svy.mk/1QhGZlY

It should only take a few minutes to complete, thank you

im happy to do this. I am a dental nurse and it was one of the dentists who suggested it was some kind of immune problem I had, way before my long travel to diagnosis. It would be great if more dental proffesionals were clued up to this condition

edies_mum82 profile image
edies_mum82 in reply to

Hi, thanks for your response! The questionnaire link is: svy.mk/1QhGZlY

It should only take a few minutes to complete

odette11 profile image
odette11

I'm happy to help,suffering for 4 yes waiting on diagnosis still.my email is greeneodette@yahoo.co.uk

lesleyg profile image
lesleyg

Hi, all the best for your survey. Have just completed it online.

Cheers Lesley

edies_mum82 profile image
edies_mum82 in reply to lesleyg

Thank you very much

Wendymoo profile image
Wendymoo

Sorry for late reply, im happy to do it. Ive had to have gum graphs due to the ulcers eating away at my gums etc etc. if you could send it me via email I would be more than happy to help you, my email is wendy_moore1@sky.com.

Many thanks

Wendy

Wendymoo profile image
Wendymoo

Sorry for late reply I have only just seen your post. I am happy to do this, I have had BD since 1998 and amongst various treatments etc I have had to have gum graphs due to the ulcers eating away at my gums. If our still looking for people my email is wendy_moore1@sky.com.

Take care

Wendy

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