FACEBOOK

[shirley63_]

I DOES ANYONE KNW THE FACEBOOK PAGE NAE I HAVE TRIED BECHETS FACEBOOK BUT NO LUCK , I KNOW TS A CLOSED GROU BUT AS I HAVE BD WANT TO JOIN IT AND HOPEFULLY CHAT TO SOME OF THE LOVELY PEOPLE I MEET ON HERE AND AT THE HOSPITALXX

[goodlife]

There is an old post with someone else asking the same question. Apparently it's invisible as it's private and therefore you have to be invited....message zebra.....I'm sure she won't me passing on what she said in another post....(don't be cross zebra as I'm creating a profile so I can finally use Facebook in the next few days and will be asking for admittance too ) x

[Zebra in reply to goodlife]

Thanks for sharing. I try to pick up Uk patients where I can but Health unlocked is an excellent group too so I don't promote here just respond to those asking. Thanks for explaining the process as I am not on here each day and wouldn't want UK patients wanting to join to miss out.

[Zebra]

Hi Shirley, we have a private Facebook group for UK patients. I will drop you a private message so that you can send me a friend request which enables me to add you. Thanks

[Aysemenekse in reply to Zebra]

Hiya , could i also join please. Thanks Ayse

[rachyates in reply to Zebra]

Hi, any chance I could be invited also? Thanks x

[scruffy1]

hi zebra i also sent a friend request i also pm ed you regarding it its a great idea as i am from ireland it would be great to talk to others regarding bd although this forum is great as well!!!

regards

chris

[Aysemenekse]

Could i join please. Thankyou

[Zebra in reply to Aysemenekse]

Hi, are you a Behcet's patient? And if so, which country do you live in? I will private message you a contact or link to the appropriate group when I know which is best.

[lea-1 in reply to Zebra]

Hi zebra,I have been diagnosed today with behcet's, I live in the uk.

[Zebra in reply to lea-1]

I have sent you a message Lea.

[Aysemenekse in reply to Zebra]

Hiya Zebra! I am a member just forgot to sign in when i wrote to you

I live in the UK , but am Turkish. Thanks xxx

[Zebra in reply to Aysemenekse]

I am sending you a private message with the contact.

[joanne_732]

Hi, Could I join too please, I have behcets and live in the UK. xxx

[Zebra]

There is a very active support group just for the UK with over 415 members. It is hidden for complete confidentiality but if you post your Facebook profile details then you can be invited. Local meet ups are organised through it and there are many new posts every day and friendships made and experience shared. It's been going for over 6 years at least now.