Privacy Warning: We recently had a rogue advert... - Behçet's UK

Behçet's UK

5,393 members4,391 posts

Privacy Warning

UKADMIN profile image
UKADMINPartnerBehcet's Syndrome Society
2 Replies

We recently had a rogue advert on the forum and perhaps it is timely to remind users that unless you tick the 'members of this community only' button everyone on the Healthunlocked Forum can access it. The site is monitored by us regularly and you can send an email to info@behcetsdisease.org.uk any time with queries and questions, we also have a medical panel who can answer specific questions (all of which is conducted anonymously) do please use this facility.

The forum is well used and very helpful to patients, I think awareness of privacy is an issue for many sites Facebook included, do take care with personal information on any site.

Written by
UKADMIN profile image
UKADMIN
Partner
To view profiles and participate in discussions please or .
2 Replies
andreafm profile image
andreafm

Thank you so much for your input...it is welcomed to explain both the services of the Behects Society and the working of this forum in respect of the privacy of the comments that people put on it.

I and others try to warn people of the 'members of this community only' button but as others post questions/postings, the warning moves down the list to disappear, thus the warning is lost.

I have discussed this with Chris Philips from Behcets Society and Healthunlocked who have passed it onto the people involved in designing this very useful forum. Healthunlocked have replied to me that it will be looked into at their next meeting.

Hopefully we will see a resolution to this issue

goodlife profile image
goodlife

Well said Angela. I too am very grateful to the Behcet Society, and in the main the forum is a wonderfully supportive community.

Hopefully we will all continue to work together to eradicate rogue postings as quickly as we can.

Not what you're looking for?

You may also like...

Board Organisation - for input by both Admin and Members

I know from some private messages and some public comments that there are a few organisational...

Finally, starting Remicde!

Hi everyone, I haven't posted for awhile... I have end stage NEURO BEHCET'S DISEASE. MY DOCTORS...

Shall we INFORM THE WORLD?

Our exchanges through this website has been very informative. We now know that there are a number...
magician profile image

dissertation proposal for life as a Behcet's syndrome sufferer

for my dissertation proposal, im looking for people to complete some questions about life with...
samiijones profile image

Dental Work

Hi Everyone After some very expensive root canal work (which hasn't been successful) I have been...
lesleyg profile image

Moderation team

UKADMIN profile image
UKADMINPartner
TonyWT profile image
TonyWTPartner

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.