Hi I have just heard from someone else who has behcets that there is a specialist who comes to the UHW in cardiff once a week on a Thursday

[Jackamo]

Just wondering if any one else knows if this is right ? X

[Hidden]

Yes . There is a Brilliant specialist but really difficult to get on his waiting list so I have been informed.

This is the person that I see.

[Jackamo in reply to Hidden]

Thank u butterfly an he's in cardiff can u send me his name and any idea of how I could get on his list please thank u so much it has give me some hope now x

[Hidden in reply to Jackamo]

Dr Nash.

I had to be referred by my GP after being diagnosed.

I think after referral its around 9 months approx to get an appointment.

Good luck ......hope you get your referral to Dr Nash.

I have found Dr Nash to be a great help .....

I now have my LIFE BACK......medication and change of diet has helped ( keep off dairy

and wheat and processed meats....... I find to help with flare ups.... )

He quickly got to the job of getting me started on medication and has been understanding and has listened ......which is a rare thing nowadays.........

xxx

[Hidden]

Hi there .

I had to be referred by my GP.

I understand that once referred it takes approx 9 months to see him as he is in demand

I have found Dr Nash to be a great help and I now have my LIFE BACK...... thanks to him getting me started on medication and steriods .....they wake the dead ....LOL.

A change of diet also helped ...I stay off wheat, dairy and processed meats or any thing containing sulphates.

GOOD LUCK WITH THE REFERRAL

ALL the best

butterfly_xx

[Jackamo in reply to Hidden]

Thank u so much butterfly I will defo go c my gp on Monday an ask for a referral xx

[Hidden]

Sorry submitted a reply twice......

I said steriods wake the dead ......but NOT all my brains cells....... by the looks of it .......lol xx

[Jackamo in reply to Hidden]

Lol r u from cardiff ? X

[Hidden]

Yes.

[Jackamo in reply to Hidden]

It's nice to know there are some people local that nows wot ur going through not that I would wish this on any one but u just feel ur on ur own an no one understands if it weren't for this site don't know wot I would do x

[Hidden]

I know what you mean. It was pretty tough at first . I have been diagnosed nearly 5 years now and I am MUCH better now.

When you get on the medication best suited for you there will hopefully be a more positive outcome for you/

Keep on smiling even when you feel like death....that helps as nice positive endorphins snuggle around you and it also helps your nearest and dearest to cope better al

Keep me up to date on progress with GP.

XX

[Jackamo in reply to Hidden]

I will do thank u an I'm glad ur doing well xx