I am very glad I found this site.. It seems to be filled with very good information. I'd like to share my story and ask for your opinion.. It would be great to hear from people with similar experiences.
In the past 7 years I have had 4 major episodes with strange symptoms - 2006 small and mid size veins breaking under my skin on my limbs, gallbladder and kidney pain, in 2008 - synovitis in my right ankle, erythema nodosum on my thighs and arms and arthritis in my hands, and the oral aphtae. I also had 2 submandibular nodes swollen and painful. In both cases I assumed it was viral infections causing all this although I never tested positive for any virus except Epstein Barr. The symptoms also seemed to be winding down over the years so I thought they would eventually go away. Then in 2011 I had the 3 doses of the hep B vaccine.. and something seemed to go very wrong. My kidneys started hurting especially after a cup of coffee, I started getting eye attacks in both eyes also worse after coffee, bigger veins were breaking on my thighs and elbows and the arthritis was worse than before. Finally last year I contracted enterocolitis and I started getting pustules on my buttocks and arms. They gradually disappeared but I still get one or two after working out.
For the past 6 months I have not gotten any new symptoms and some of the old ones seem a bit better (eye attacks although still getting them but not as violent) while others seem worse like the arthritis (I had a painful attack on the cervical spine joint) and kidney pain.
Does this seem familiar to you? I forgot to mention, I do have a G.P. who says she thinks it is behcet's but the 2 immunologists I have seen sent me away saying that I have perfect lab work (no HLA B 51 or B27, no sign of inflammation). So far I have only taken arcoxia for arthritic pain although I can only tolerate it for about 1 week at a time.
Does anyone have a similar experience with vaccines and virus infections taking a long time to heal? Do you regularly get vaccinated for the flu, etc?
Thank you for any thoughts you may have on this! I hope we all get some relief from this painful condition and be able to lead normal lives..