Jaida is 11 years old and along with a flare and all symptoms disgusting, ferrel migraines are taking hold. The past three weeks my daughter is having up to 4 migraines a week, making her vomit with the pain. Going to the Royal Children's Hospital next Thursday but was wondering if anyone has any advice.
Jaida has been having bad thoughts of wanting to die, now diagnosed as having sever depression. Behcet's it testing not only her body but her beautiful little mind. I hate not seeing her smile I just wish one of these bloody drugs would take the pain away.
Have just paid for the BD conference in Paris. Booking flights next week. The money is definitely a stress but I feel we have no option. All I hope to do is learn more about this crippling disease and meet the leading specialists in the world. I'm just so scared of leaving Jaida. I hope by September she will be in a better place.
Sorry to go on, I needed to vent.