Apologies if you have seen this question posted on my blog page by mistake.....
Hello there everyone,
I was misdiagnosed for 12 years before I was finally re-diagnosed as having Behçet's.
Originally I was diagnosed as having Chronic Fatigue Syndrome but my GP back then had no idea that some of my symptoms like epydidymitis were not just random but relevant to Behçet's and then 2 rheumatologists failed to recognise symptoms I had but was never asked about or realise what they meant at that time.
I was also a diagnostic radiographer for 10 years working down in Dorset and Hampshire but I was forced to retire and then spend 8 years confined to my bed and living with my parent's who became my carers.
I have decided to work on a project about medical misdiagnosis.
As a diagnostic radiographer I studied anatomy, physiology and pathology for 3 years and patient care/hospital practice for 18 months before graduating where learning became a daily enjoyment.
I learnt a great deal about the importance of accuracy and how serious a misdiagnosis could be for the patient. There is some irony with what happened to me.
In NHS terms, your diagnosis is critical to your "treatment pathway" or "care pathway" so if you are sent down the wrong pathway you will not get access to the treatment or care that is correct for your diagnosis.
I would be tremendously grateful if anyone reading this who has been medically misdiagnosed before finding out they had Behçet's could tell me just two things....
1) what was the misdiagnosis? and
2) how long did you have to struggle with that misdiagnosis?
I do not need to know your name and I would never ask for personal details.
If you want to comment on how you coped then by all means but that is your choice.
And this issue is not just about Behçet's disease because any misdiagnosis can be critically important to the patient - even life threatening.
In time and after I have collected some statistics from real people, I would like to raise this issue with the General Medical Council because it seems to me that doctors have absolutely no accountability for making non-fatal or even delayed-fatal misdiagnoses.
Doctors who make these misdiagnoses just move on and up the professional ladder leaving their clinical misjudgments in their wake....
If they were pulled up on every case they got wrong - if they realised what their mistake had meant for the patient then they could be subjected to further education to stop them making the same mistakes again down the line.
Whilst the doctor has no responsibility, the misdiagnosed patient is often dealt a personal disaster and becomes a victim of a form of medical mistake or bad clinical judgement.
Some might say that this is a form of negligence.
If anyone would prefer to e.mail me "off blog" my address is Herbiv4@gmail.com.
Many thanks for reading this.
Stephen Ralph. South Ayrshire, Scotland.