The last time I went to see my neurologist a couple of weeks ago, it was someone from the team who I hadn't met before. He did the SARA test on me and was very pleased with the results, 2018- 18, 2021-15 and most recently 10.5!
He said that this can only be because of my daily exercise regime. Balance, strength and cardio for just over an hour every day. I've heard people say that exercise is important, now I've got proof that it definitely is.
Good news, Tallguy101 - keep it up!
Regular exercise can work wonders. Keeping to a sleep and diet routine may help you achieve the exercise goals too.
Thanks, the other thing I was told is that I have sca 48, up until recently though I was unknown type. So it's good to finally put a name to it. Thankfully it's a slow progression sca, so that's promising.
Hi what is the SARA test please
The Scale for Assessment and Rating of Ataxia. It's the test doctors and neurologists do when seeing patients, the higher the score the more difficulties they have in everyday tasks. Heel to shin, nose to finger, standing with the feet touching and balancing unaided, flipping hands over 10 times in a set time etc...Hope this helps.
Thank you I had that test 3 years ago when I first saw the professor at Sheffield but the last two years I just seen his assistants and they didn't do the test. I haven't had a letter for this year for a appointment so it doesn't look like I will be going again I do feel like because they don't know which ataxia I have they are not bothered. Does everyone else go every year to see a specialist or just for so long.I do some exercised that the physio gave me the first year but is there some more that I could print off do you know
Web is good place to research exercises. NAF site in US even some MS sites are good. Stick to what suits you, don't overdo it and stay from falls.
My first year with SCA7: Pilates, CBD oil and reading 
Dystonia
Feeling fed up
Exercising Yay or Nay
does any1 have a problem with their bowls
