Tremors

[Ostap]

Does anyone suffer from tremors with their Ataxia? I cannot use my hands at all they’re so bad. I can’t even brush my teeth or unpeel a banana. No medication has made a difference.

[PatsyIpswich]

No but my husband has Parkinsons.. he has a drug to control tremor. I'm wondering if your neurologist has tried everything. X

[Ostap in reply to PatsyIpswich]

Clearly it’s incredibly difficult to control. Thank you for the reply. I’d like to think that the neurologist is doing their best!

[Knittlng]

yes I also suffer from the same problem,To date I have nothing to help. One gadget I wouldn’t be without is a small tank that holds enough water for about six cups of tea, it boils the water then pours it into your cup , no more danger with a shaking kettle.

Dee

[Ostap in reply to Knittlng]

Thank you for the reply. I’m like a dog, in as much as I can’t do anything with my hands. I only drink a prepared drink from a straw.

[klazien in reply to Knittlng]

Where did get this 'small kettle' .

[Frenchoak in reply to klazien]

Just bought my elderly mother-in-law one of these - she loves it! She's got very bad arthritus & was finding a normal kettle too heavy. Its ideal for her, really easy to us & big plus, it saves eleectricity! Well worth it! I have Ataxia and would have no hesitation in getting one when I need to. Hope this info helps.

:argos.co.uk/product/1979099...

[Knittlng in reply to klazien]

it was a Gift, but I think most aren’t well shops

[Knittlng in reply to klazien]

It was a gift but I think most hardware shops have them.It’s a Breville hot cup

[sonofapeter]

Amantadine?

[Amynah]

Yes I suffer from shakes - my neurologist tried a lot of medication and then I settled with one - I have SCA1 and the shakes never go away - even with medication I still have shakes - the medication only reduces the shakes - good luck

[Ostap in reply to Amynah]

What was the medication? Did it significantly help? Thank you for replying.

[Amynah]

Sodium valproate - but do look up on internet when your neurologist gives you something new to try

I forgot to add that one thing really helps the shakes is exercise - you can find hand exercises on YouTube I do both hand and leg exercises - my legs have started shaking and I started falling a lot and have to use a wheelchair