My wife (68) was diagnosed with Cerebella Ataxia on 26th September 2016 and referred to a neurologist …… we still await an appointment. Like many writing on these pages I am left to find out what I can through Ataxia UK website. We desperately need to know what type of SCA she has. We live in Scotland well away from the four clinics in England – London, Oxford, Sheffield & Newcastle. There is a “centre” in Edinburgh but no information about it. If my wife has to go there she will need to be referred by the local neurologist ….… when we see him. The last time she was referred it was in January 2015 and we got an appointment on June 30th. Then they ruled out Dementia, MS, Alzheimer’s, Parkinson’s and a stroke. Our GP says they missed the Ataxia!!
An Ataxia Volunteer (found through Ataxia UK – Supporting You – A List of Branches and Support groups) is visiting us in the New Year so we hope we will find out a lot more then.