A shared story of SCA3: Bill Moore & his daughter... - Ataxia UK

Ataxia UK

4,046 members4,596 posts

A shared story of SCA3

wobblybee profile image
0 Replies

Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers & drug developers understand the realities of living with Ataxia. You can read it here: c-path.org/impact_story/cpt...

Written by
wobblybee profile image
wobblybee
To view profiles and participate in discussions please or .
Read more about...

You may also like...

My attempts at managing SCA3

not taking any half measures when dealing with my SCA3. I do not go to maximum EMS levels as this...

Newbie with SCA3

Hi Anyone out there who has the same ataxia as myself. Am 30, was diagnosed last October after...

Cerebellar Ataxia SCA3 (Machado-joseph)

sessions of physiotherapy and I have came down on the ataxia assessment scale. In May I rated 13...

Join a remote Study for SCA1. SCA2. SCA3. or SCA6

edu/medicine/ccs/neuroscience/research/harding-group/spinocerebellar-ataxias-remote-assessment-study

Ataxia sca3

father back in november but he had passed from ataxia at age 55 his brother and niece have also...