Join a remote Study for SCA1. SCA2. SCA3. or ... - Ataxia UK

Ataxia UK

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Join a remote Study for SCA1. SCA2. SCA3. or SCA6

wobblybee profile image
9 Replies

A new remote study from the Harding Lab at Monash University aims to better understand how different brain and body functions (movement, speech, thinking skills, & mood) are affected in spinocerebellar Ataxias, and how these functions change over the short-term and long-term. If you have SCA1, SCA2, SCA3, or SCA6 and are interested in participating, you can find more information here: monash.edu/medicine/ccs/neu...

🙂Participants from around the world are welcome to join!

Copied from ataxia.org

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wobblybee profile image
wobblybee
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9 Replies
Eunseoc profile image
Eunseoc

I can see you everywhere including NAF Facebook and livingwithataxia. Thank you for your activity

7151 profile image
7151

Thankyou i ll lookinto this !

Driven1 profile image
Driven1

Hi Guys

I am in OZ and have been doing the Harding study for 23 months

Each month you do an online test at your own pace.

Visual, speaking, finger motion and listening.

Results are recorded and analysed and you can see what changes have occurred over time :)

Have a go

wobblybee profile image
wobblybee in reply toDriven1

🙂 Thank you

Good to know🙂

🤔 Is your Study for the same SCAs

7151 profile image
7151

Hi thé problème for me is my neurologue ( i have another appointment next tuesday 28 ) they say i have Ataxia but dont know what sort . They think. It celebrela Ataxia ! It affects my walking and now worst of all is thé trembleing Thanks for all your help x

wobblybee profile image
wobblybee in reply to7151

🙂 I hope your Neurologist can suggest medication to help alleviate tremors. My diagnosis is Idiopathic Cerebellar Ataxia, so I’m not eligible for the Study..and my walking is affected too.

7151 profile image
7151

Yes my walking is like someone drunk but i m coping with that bit ! Its thé trembleing that is hard to cope with I hope i can get some answers when i see thé neurologue ..unfortunatly she dosent say much apart from how difficult it is to find thé cause apart from what she thinks and thats antaxia cerebelar

wobblybee profile image
wobblybee in reply to7151

I know myself how frustrating appointments can be..Neurologists don’t seem to offer much information, but you can get an answer if you ask.

In the past I’ve made notes of questions I needed to ask, because it’s all too easy to be distracted at the actual appointment.

Sometimes, it can be very difficult to find the exact cause, there are just so many different types. But, I hope she can offer help with trembling..

7151 profile image
7151 in reply towobblybee

Yes i be realy got to get thé list done 🙂

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