Join a remote Study for SCA1. SCA2. SCA3. or SCA6

[wobblybee]

A new remote study from the Harding Lab at Monash University aims to better understand how different brain and body functions (movement, speech, thinking skills, & mood) are affected in spinocerebellar Ataxias, and how these functions change over the short-term and long-term. If you have SCA1, SCA2, SCA3, or SCA6 and are interested in participating, you can find more information here: monash.edu/medicine/ccs/neu...

🙂Participants from around the world are welcome to join!

Copied from ataxia.org

[Eunseoc]

I can see you everywhere including NAF Facebook and livingwithataxia. Thank you for your activity

[7151]

Thankyou i ll lookinto this !

[Driven1]

Hi Guys

I am in OZ and have been doing the Harding study for 23 months

Each month you do an online test at your own pace.

Visual, speaking, finger motion and listening.

Results are recorded and analysed and you can see what changes have occurred over time

Have a go

[wobblybee in reply to Driven1]

🙂 Thank you

Good to know🙂

🤔 Is your Study for the same SCAs

[7151]

Hi thé problème for me is my neurologue ( i have another appointment next tuesday 28 ) they say i have Ataxia but dont know what sort . They think. It celebrela Ataxia ! It affects my walking and now worst of all is thé trembleing Thanks for all your help x

[wobblybee in reply to 7151]

🙂 I hope your Neurologist can suggest medication to help alleviate tremors. My diagnosis is Idiopathic Cerebellar Ataxia, so I’m not eligible for the Study..and my walking is affected too.

[7151]

Yes my walking is like someone drunk but i m coping with that bit ! Its thé trembleing that is hard to cope with I hope i can get some answers when i see thé neurologue ..unfortunatly she dosent say much apart from how difficult it is to find thé cause apart from what she thinks and thats antaxia cerebelar

[wobblybee in reply to 7151]

I know myself how frustrating appointments can be..Neurologists don’t seem to offer much information, but you can get an answer if you ask.

In the past I’ve made notes of questions I needed to ask, because it’s all too easy to be distracted at the actual appointment.

Sometimes, it can be very difficult to find the exact cause, there are just so many different types. But, I hope she can offer help with trembling..

[7151 in reply to wobblybee]

Yes i be realy got to get thé list done 🙂