Why are no Neurological diseases on Govn list

[Litty]

I can’t understand why advanced chronic neurological diseases (such as Ataxia, Parkinsons and MS) were on the original Gov. vulnerable list but not now on extremely vulnerable list so support missing in isolation. We all know what pneumonia would do, it seems Gov. does not.

[Sailor_Girl]

The description seems to have changed from vulnerable to extremely vulnerable to clinically extremely vulnerable. With Ataxia as a disabled person can we get assistance/priority entry into shops and possibly help from local charitable groups of volunteers?

[Litty in reply to Sailor_Girl]

I need to be on the list. My supermarket which I use online will not deliver unless you are on list! x

[Tiggywinkles in reply to Litty]

Me too! Luckily my partner, who doesn't live fulltime with me but has self-isolated here so we can be together, is over 70 so is entitled to one delivery a week via Sainsbury's - the only time his age is working to our advantage!!!

[HarryB Administrator]

Hi Litty

I know how frustrating this whole situation is.

Please go to the following link for advice, which has been put on the Ataxia UK website in the last couple of hours.

ataxia.org.uk/news/are-you-...

Best wishes

Harriet

[Litty in reply to HarryB]

Huge thanks - I have tried that and was too honest!!

Now succeeded so wait and see x

[cocoa in reply to Litty]

Interested to know what was your key to success?