We have a virtual meeting of the Medical Advisory Panel of Ataxia UK in a couple of weeks. One of the topics we will be discussing is how neurology appointments have been affected by the coronavirus climate that we unfortunately find ourselves in. I would be so grateful if you could let me know about your experience by answering the following questions, so we can gather some anecdotes of how neurology appointments have been affected by the coronavirus climate. Please feel free to either put your accounts on the main forum or message me privately (HarryB).
1. Where do you live?
2. What hospital do you go to in order to see your neurologist?
3. Have your appointment(s) been cancelled during the coronavirus crisis?
4. If your appointment(s) has gone ahead how have they been delivered eg, telephone, video calling?
5. Have you had any access to physiotherapy, occupational therapy or speech and language therapy and if so, how have these services been delivered to you?
Please do not feel bound by these questions. You can say anything you would like! They are just a guide for the kind of information that will be helpful to us.
Thank you for your help in advance.
I live in South Lincolnshire and have been waiting for a neuro appointment since January. I was told at the time that the waiting list was so long they could not offer me an appointment for some considerable time. I don't expect to get an appointment this year as things stand.