No pain versus pain: Hi all, I find that most days... - Ataxia UK

Ataxia UK

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No pain versus pain

ww-wibblywobbly profile image
14 Replies

Hi all,

I find that most days I don't really feel if I bump myself etc. I often have bruises and I have no idea how I did them.

Then other days I can't even bear for something to touch me even gently!

I'm not referring to pain from contracted muscles etc, I often have that, but pain caused from something exterior like bumping yourself.

Does anyone else have similar experiences of this type of no pain/pain?

Love

Alison xx

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ww-wibblywobbly profile image
ww-wibblywobbly
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14 Replies
wobblybee profile image
wobblybee

🙂 I’ve seen similar posts Allison, you’re not unusual with this sort of thing. It’s likely that it’s part and parcel of your specific diagnosis. Some of us are just more sensitive to light touch. Mention it to your Neurologist, and you should get an explanation.

I fell heavily recently, and fully expected to have spectacular bruising. Instead, what I’ve had has been weeks of tortuous pain, but not a bruise in sight 🙄

ww-wibblywobbly profile image
ww-wibblywobbly in reply towobblybee

Hi Beryl,

I did mention it to my neurologist in June, but she didn't comment or give me any explanation! Actually I don't think she's that clued up on Ataxia 😒.

She also said that Ataxia doesn't directly cause depression. My humble opinion is that it can cause an imbalance in the brain which could give depression. But I'm no expert, just a sufferer LOL

Thanks for replying

Xx

wobblybee profile image
wobblybee in reply toww-wibblywobbly

😏 You’re right Allison (about depression). Although Ataxia may not directly cause it, dealing with Ataxia symptoms certainly can. Just as well we’re clued up 😉

ww-wibblywobbly profile image
ww-wibblywobbly in reply towobblybee

Hope you feel better soon from your fall xx

wobblybee profile image
wobblybee in reply toww-wibblywobbly

🙂 Ah, thank you Allison

I'm the same Alison. I too wonder at times how I manage to get bruises yet I can also be very sensitive to pain. Odd😕

ww-wibblywobbly profile image
ww-wibblywobbly in reply to

Nice to know it's not just me!!

Veteran250 profile image
Veteran250 in reply toww-wibblywobbly

Hi folks, I too get unexplained bruises etc....... I have no feeling in my legs below the knees due to diabetes, when I lose my balance and fall over, I may stubb my toes, causing them to bleed, but having no feelings in my legs means I dont discover any injuries until I get undressed for my bath!🤨

Staggy1 profile image
Staggy1

I know where the bruise on my arm came from... I slipped on the last three steps of my stairs.... I need to live in a bungalow! XXX

Veteran250 profile image
Veteran250 in reply toStaggy1

Bring the bed downstairs Caroline 😀 Xx

ConfusedAtaxian profile image
ConfusedAtaxian

Dear. Alison, my legs are always bruised and often I don’t know how. I also have little purple bruises (purpurea? I forget the name). Apart from the bruises being sore at first, I can’t really say I have pain or I blame old age. Trousers are the order of the day, lol. Linda 🤗

Hello yes I really think those with Ataxia bruise easily, I have been getting a bruise from just a slight bump into something due to balance issues. This was a problem years ago.

ww-wibblywobbly profile image
ww-wibblywobbly in reply to

Mine is more that I don't seem to feel when I've hurt myself most of the time, and then other times I can't bear even someone to touch me gently.

Always covered in bruises!!!

in reply toww-wibblywobbly

I don't feel hurt either, I hate hugs I don't like to be touched myself. People look at people with Ataxia like they are not there age, because life for them is different not wanting to be touched isn't a disconnect. I'm just not in the mood for people who don't want to educate themselves about Ataxia suffering.

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