Do you have double vision?: Have monocular doplia... - Ataxia UK

Ataxia UK

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Do you have double vision?

Maxineto profile image
21 Replies

Have monocular doplia aka double vision in one eye. Doctor wants to inject botox into my eye which he says may fix the problem. Anyone have this done or know of someone who did this? Need to know some information about this unknown procedure.

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Maxineto profile image
Maxineto
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21 Replies
hsilverman1 profile image
hsilverman1

I have never heard of injecting Botox in a eye . Myself, I have had Botox injections for Hemiplegic Migraine, which didn’t help.

Is this Doctor an M.D.? I would be very wary of this procedure.

Diploplia or double vision day usually due to nystagmus or strabismus due to certain types of Cerebellar Ataxia.

Have a good night 💤.

Howard Silverman

USA

Maxineto profile image
Maxineto in reply to hsilverman1

Thanks for replying. Doctor is eye specialist in Mexico where I live.

Litty profile image
Litty

My specialist recommended this last visit - but I did not like the sound of it so did not try - sorry x

Maxineto profile image
Maxineto in reply to Litty

Yes, it does sound awful. My neighbor goes to an eye specialist for eye injections for her macular degeneration which she says helps her. Don't know if it's Botox. I should ask her.

wobblybee profile image
wobblybee

🙂I have had a Botox Injection into the eye to try to alleviate double vision. This recognised procedure was recommended and carried out by a NeuroOpthamologist. For me, unfortunately it wasn’t successful, but only because my specific eye condition had been severe due to Iritis.

My NeuroOpthamologist then offered me surgery to realign the muscle. This is commonly known as ‘squint surgery’ and it was successful🙂

Previously, I’d progressed through what seemed to be a never ending stronger degree of Prisms in my glasses. Because I also have Nystagmus, the stronger the Prisms became, the more unstable I felt when walking about.

Now, I still have a sensitivity to light, but my glasses don’t require Prisms.

🙂xB

I should add, the Botox Injection wasn’t painful, my eye was anaesthetised beforehand. And I don’t recall any side effects.

Maxineto profile image
Maxineto in reply to wobblybee

Most interestesting! You are the only person who has had botox injection. It was suggested to me by my Mexican opthamologist, but I'm going to U.S. to see a neuro-opthamalogist for another opinion. I wonder if the Botox injection is not given in the U.S, but other countries or everrwhere?

wobblybee profile image
wobblybee in reply to Maxineto

🙂 I live in the UK. I had the Botox injection at a large teaching Hospital here.

Maxineto profile image
Maxineto in reply to wobblybee

Thanks for your input. I can't wait to see doctor in U.S. for another opinion. Stay tuned!

pinjem profile image
pinjem in reply to wobblybee

Interesting, my "squint" makes safe (ish) moving and assessing distance even more difficult and is not improving, though it has done in the past. Re light, I, and my daughter who is healthy, benefited hugely from cranial osteopathy. After years of lights hurting my eyes, it stopped. Daughter could also drive after one visit without headlights dazzling her. For about £50, it is worth trying? They may have to work towards the problem, easing other things in order to get to the parts that need working on. I wrote a post but cannot find it, sorry.

jomo50 profile image
jomo50 in reply to wobblybee

Hi wobblybee

We know each other and have met at both at the ataxia group and the ataxia hospital.

I too have several prisms ion my glasses and I am interested in the squint surgery and also the name of the neuroOpthalmist who carried out your surgery. I have an appointment at the eye hospital in Newcastle on 12th August. Look forward to hearing from you. J

wobblybee profile image
wobblybee in reply to jomo50

🙂Hi J. It’s good to hear from you 🙂 I saw Miss Dayan at the RVI. Bear in mind, my double vision was primarily caused by Iritis, and not necessarily linked to ataxia. Also, my left eye was always the weakest and responded well to ‘Squint’ surgery 🙂

jomo50 profile image
jomo50 in reply to wobblybee

Thanks B I also have double vision and 14 or16 prisms in my glasses. It appears as though my right eye has dropped and no one appears to be able to provide me with glasses I can use. J

wobblybee profile image
wobblybee in reply to jomo50

😏 I recall mine had reached 15. The Eye Dept staff at the RVI were very thorough and caring🙂 Before the Surgery, I’d also tried an Occlusal Contact Lens, and Partial Occlusal Contact Lens, and both gave very good results. To be honest J I’d reached the point where I’d try anything. I’d had Iritis, and it severely damaged my left eye, and fortunately my right eye was able to compensate. Best wishes for your appointment 🙂

jomo50 profile image
jomo50 in reply to wobblybee

Thanks again B I too have had an Occlusal contact lens but was unable to use it having poor dexterity in my fingers, so I am going to ask if the squint surgery is necessary on my next visit.

Thanks again for all your help. J

jomo50 profile image
jomo50 in reply to wobblybee

Hi B Thanks for all your info. I have now seen a neuro opthalmist who said I had 35 prisms in my glasses. He is now going to carry out an operation in late Jan early Feb. Hope it works will keep you posted.

J

jomo50 profile image
jomo50 in reply to wobblybee

Thanks , Have also tried the same. Hope mine goes as well as yours as like you I will try anything,

J

wobblybee profile image
wobblybee in reply to jomo50

👍🙂

wobblybee profile image
wobblybee

🙂 It’s interesting that you felt benefit. A Cranial Osteopath was one of the many ‘therapists’ I consulted in the past. The Cranial Osteopath didn’t help my eye problems, or in fact make any difference to any of the other symptoms I was experiencing. This is probably because my specific eye condition was only helped by medical intervention. On reflection, I only wish I could recover the money wasted at high street Opticians. Although, one of them actually said they suspected Nystagmus, and asked if I like to be referred to a Specialist.

Maxineto profile image
Maxineto

The neuro-opthamologist said that my double vision in my one eye is caused by the shunt in my head and I should have a MRI. The neurologist didn't seem to think that it was my shunt, but also suggested a MRI just so we can make sure f it is or isn't the shunt in my head or something else in my head. I am getting the feeling that these doctors don't understand what double vision is. I'm very disappointed in those doctors. But, my double vision in my one eyes seems to be getting less over time. That is very odd, but I'm quite pleased it's happening. Wonder what's going on with my eye?

Maxineto profile image
Maxineto

Since adding my previous comment, my right eye is seeing double more. They said I had Doplia. But, no one seems to know why or what. I will be getting a MRI of my head the first week of October so the Optho Neurologist and the Neurologist can see what's going on with my eye/head. I just hope I don't explode in the MRI. They seem to think that being in a hospital setting, if something goes wrong with the shunt, they can readjust it. Hmmmm. Hoping I can report results here.

Maxineto profile image
Maxineto

I'm off to San Antonio to get the MRI, that is if my primary doctor will approve the procedure to the insurance company. I think he will. The double vision in my right eye is now getting worse. Have to close my left eye to see TV or drive. Is Diplopia a common disease or just age? Doctors cannot seem to agree.

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