Cloudy blind vision

[ww-wibblywobbly]

Hi all,

Just wondering if anyone has experienced this:

In the summer I got up in the night for my usual trip to the loo and I had to stop walking as I completely lost my vision. I couldn't see anything and it was like I was in a thick cloud. I stood blinking my eyes for a few minutes and then my vision came back.

I thought to myself, things can happen once and didn't worry about it.

Then last week I got up in the night for my usual little trip, and it happened again, but this time just in my right eye. It took a little while to come back, but came back.

I already have an appointment with the ophtalmologue in February, I rang them today to see if I can advance the appt. She said if it happens again then I must ring the same morning and go the same day.

Anyone had this happen to them?

Thanks

Alison xx

[oniki44]

Safest to get a nightlight, Alison. I am completely blind in the dark and also in low sunlight. Get it checked out, though. All the best from Oniki.

[ww-wibblywobbly in reply to oniki44]

A nightlight wouldn't have made any difference, I still wouldn't have been able to see !!!!

[Grapes12]

Hi Alison,

Yes I have had this problem too; in terms of both eyes only for a few minutes my whole vision just goes blurry like you said.

But quite often I cannot see out of my left eye. I try and wipe it or blink but it takes some time to come back. I'm also going to see my optician soon to get it checked out. I went to see my GP and they thought it might have been linked to a migraine as recently they think I may have been suffering from hemiplegic migraines.

xx

[ww-wibblywobbly in reply to Grapes12]

We do seem to have some very similar symptoms.

I'll let you know what the drs say

[Staggy1]

Thankfully no, so I really hope your app can help you manage it... x

[ConfusedAtaxian]

I would go to the GP. My mum had a similar experience and told the doc in passing. It turned out to be more important than the reason for her visit. Best wishes.

[ww-wibblywobbly in reply to ConfusedAtaxian]

I'm seeing the Gp next week so I'll tell him. What did it turn out to be for your mum?

[Barry25]

Hi ww_wibbIywobbly I have late onset ceraBellam Ataxia ando I get this most days along with shaky hands , dizziness.

[benning]

You sure you weren't SLEEPWALKING lol...It sounds dangerous though. Take care.

[ww-wibblywobbly in reply to benning]

No definitely not sleep walking!! 😂🤣

[Hoenir]

I had this for years during both daytime and night time. Been to the optometrist a few times but nothing unusual found. Kind of used to my body doing weird and unexplained things now so doesn't phase me much! 😅 Just a bit annoying to be blinded for a while.

Would love to know if they find a cause for you. Unfortunately, doctors here just don't care that much and wouldn't bother investigating.

[Wyndham in reply to Hoenir]

I've recently started using eye wipes which have made a big improvement although my problem doesn't seem to be as bad as yours.

These are the ones I have been using. (Suggest check with your doctor first)

From Amazon:-

The Eye Doctor Eyelid Wipes - 20 x Single use lid Wipes for Eyes - Suitable for Sensitive Eyes, Detergent and Preservative Free Eye Wipes

[ww-wibblywobbly in reply to Hoenir]

Yes I actually don't think that they're going to find anything - have many things weird that happen. But because they're intermittent they cant find the problems. Last time I had strange goings ons they had no answers and just said that my body was getting too tired.

I suspect that is the case with this as each time I was extra tired.

We'll see🤷🏼‍♀️.

I'll post on here what they say . .

[Litty]

Ok ataxian eyes are weird and I can just tell you about mine. I have to wear sunglasses most evenings and I hate all bright lights and headlights. Every so often I would get stars appear - I had to just wait and shut my eyes - very scary for the kids if I was collecting! My neurologist was worried and she made me see an eye specialist - but they could not find anything.

It still happens sometimes and I just wait x

[Barry25]

Hi I to get this bright lights, sunlight even the TV if there is flashing lights, I just put it down to having cerabelam Ataxia for the last 10 years, something else to cope with.