Why I asked about uk physio sessions

[ww-wibblywobbly]

Thank you everyone who replied to my recent post. Some really helpful replies.

The reason I asked this question, is cos at the moment i live in France. I was wondering if I was to come back to live in UK what sort of help I could get.

In the UK you have the ataxia centres, which seem really good. We don't have anything like that here.

But what worries me with the idea of coming back to UK is how much physio help I would get.

At the moment i go to a physiotherapist twice a week. I have been doing this for at least the last 5 years. I have a taxi that picks me up and brings me home, as i no longer drive. This is all paid for by the state as my illness will never go away - as you all know!!

I swear that the physio sessions have helped me enormously. It isn't a neuro physiotherapist, but there are patients there who have had strokes, and who have MS. A few years ago, i, the physiotherapist and the Dr thought walking was nearly finished for me. It has taken me a long time but I'm still walking, with a stick and not far, but still i am :)). I have ataxia, and spasticity virtually everywhere in my body. I just try to take each day as it comes and profit from the good days, which are definitely becoming more and more frequent.

I feel really strongly that exercise is the way for us, along with rest and eating healthily. The physiotherapist also stretches me every session and massages my neck.

I have recently extended one of my sessions to two hours instead of one so that i can increase my exercises. I suppose some of the exercises i could do at a leisure centre if I'm supervised. But I really don't want to be without the passive stretches!

Thank you all.

You are enabling me to make a decision.

Love

Alison xx

[Happyfacexx]

Hi Alison when I was diagnosed and found out that basically there’s no support given ( just come back in a year!) I’ve sort out my own support, I have joined a MS group and do chair yoga once a week ( I could go twice a week if I wanted) and group neuro physio once a week £20 a month and now have started meeting up for get togethers where they pick us up at the door also in the summer months they have MS walks (some people in scooters) there are also ataxia groups though out the uk and we meet up socially from time to time, where about in the uk would you live? Contact the ms group or the Parkinson’s group and see what support they offer, not every thing has to come through the nhs , I feel we need to be very proactive,I also have a treadmill at home which I feel is very important

[ww-wibblywobbly in reply to Happyfacexx]

Thank you for your advice. Yes I guess we do need to be proactive. Sounds like there's many more support groups than here

Xx

[123geoff]

ww-wibbly-wobbly if you are getting it twice a week this is about right the rest of the days are up to the individual to do exercises on a daily bases. An instruction plan sheet on what type of exercises you can keep to. Each day that passes by the joints muscles become much easier. It is easy to fall into a stale sit back, the idea to be in control of your situation and re-educate the brain you take over and beat it. Life goes on and you have the two chances and that is up to you too beat it. Have a lovely day.

[ww-wibblywobbly in reply to 123geoff]

I completely agree

Xx

[peterallison]

Physio in Harrogate is a big joke. I got 5 sessions over 6 months, and was given a list of exercises to do at home, on my own. The only way I could have got weekly ones, WITH a therapist, would be if I had gone private