To have the Autumn Covid booster or not? - Ataxia UK

Ataxia UK

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To have the Autumn Covid booster or not?

penelope2 profile image
8 Replies

HI all, firstly following 2 of 3 vaccinations/boosters I had quite bad side effects for 5 to 6 weeks. My ataxia symptoms were effected as well and really took a dive but eventually found myself back to where I was prior to the jabs.

I have autoimmune gluten ataxia so obviously my immune system is not stable. What really worries me is if I have another booster, of any type,then will the ataxia symptoms be permanently negatively be effected.

So the contra indications of this need to be weighed up against the effects of catching covid?

Does anyone else find themselves thinking the same? Have brought this subject up with many health professionals and always have the same answer. Get vaccinated. Can't help feeling the NHS thinks about the many not the individual!

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penelope2
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8 Replies
gossy profile image
gossy

I was hospitilized with Covid so have had all the jabs though this booster knocked me for six my Ataxia was bad for about a week and felt really poorly but I mwould rather be bad for a week than 6 months it took me to recover from Covid but its up to you and what you think I know some people that jabs made them very ill and they have only had Covid mildly

penelope2 profile image
penelope2 in reply to gossy

Thanks for your thoughts. Hope you are OK now.

Know someone who has had long covid and caught covid again recently, luckily she got over it this time quite quickly. Itis definitely a lottery.

gossy profile image
gossy in reply to penelope2

yes thanks I had Covid before jabs came out but yes you are right its a gamble dont think they realise effects Covid can have on Ataxia or the jabs

wobblybee profile image
wobblybee

🙂 I had the Covid Autumn booster last week…I still need to organise a Flu jab.

cocoa profile image
cocoa

I had my booster a couple of weeks ago with no side effects.

I was quite wobbly after my 1st vaccination but each time I have found it easier. We are all different but I would rather have a couple of days of feeling unwell than having covid.

Cupcake12345 profile image
Cupcake12345

I have autoimmune gluten ataxia and I have now had 5 Covid vaccinations being on immunosuppressants and they are always bad, side effects usually last 4 days. I would say that I had Covid-19 last Christmas and that was worse and my ataxia got a lot worse, so I agree with the health professionals and say get vaccinated, yes it’s horrible but catching Covid is worse.

Lili986 profile image
Lili986

I think 2 doses was enough. It did affect my ataxia and menstrual cycle. Can’t believe they’re up to the 5 now.

Jenandbeth profile image
Jenandbeth

Im taking Beth for both flu and covid. I didn't notice any side effects from her previous jabs beyond a long lie. There's risk in everything, it's about weighing up the risk negatives against the risk benefits and for Beth, at this time , and given her ataxia is advanced and she is at increased risk of hospitalisation the benefits still outweigh the risks for us. I can sleep easy ... even if in time it proves the wrong call ... cos we can only do the best we can with the most professionally accepted evidence we have at the time. If that changes then so will my decision.

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