Hello everyone, how exciting about trehalose. It would be great if we all had some hope for our future - the sooner the better!
In the meantime I think we should all be fundraising if we can for Ataxia UK - it has been great to have it there for the helpline, information and now this forum where we can all share ideas and what works for us but mostly to realise we are not alone.
Although I have cerebellar ataxia diagnosed nearly 6 years ago (I am 56 this year), it is progressing slowly at the moment, so I am very hopeful of treatment or hopefully a cure in my lifetime but we cannot expect research etc to be carried out relying always on other people to fundraise, so we all need to do what we can - 'every little helps' as that famous supermarket says!
I am doing the Velocity zip wire in June so will be on the scrounge for donations soon - watch this space. I have a huge fear of both heights and speed (it goes 100mpH) but it is not as scary as our future threatens to be without any treatment available yet.