I was diagnosed with ataxia a couple of years ago. I have lived in hope since then that I would show some sign of recovery as the cause was thought to be gluten. By cutting it out I should get better. After 18 months on a vey strict diet I have shown no signs of improvement and have in fact got slowly worse.
I have a very understanding boss however my output is so low t work I am really struggling to produce much of real value. My speech is so poor that I don't communicate much in meetings and when I do, colleagues don't understand what I'm saying or I get talked over. My keyboard skills now are down to one finger on each hand and my writing is almost unrecognisable (even to me). My work as a Project Manager takes me all over and I have found ways to cope with buses and trains (I voluntarily stopped driving in January after my third accident in a year which I put down to my condition). I don't want to give up work but I don't feel capable to do the things I need to. Parts of my role have been removed already to support me but it has now got to the point that I know I cant effectively do the bits that are left.
I feel that I am at the crossroads now and don't know which route to take.