I have not posted for a while now as I was pretty down and I think we can scream and shout, but all we really want to hear is the positive side. As a few of you will know I did have a moan after breaking my right ankle and it did send me into a bit of a spin. Tying to get the help you need without being made to feel either stupid, useless or then so full on that if you could you would just run away. In my head I have done both. Oh actually in my head I am still running.
You have to make all those calls as they take time; on an upside for me my ankle has the all clear so I just have to learn to walk again. For me it has highlighted how bad my Ataxia is on my left side and I can’t quite work out if it has got worse since I broke my right ankle or I was always over compensating. It would be good to hear from any of you that have been through a similar thing. I still have no idea why I have Ataxia and apart from the tests they do to prove it that I still don’t understand it is still up to me to explain it.
I am not going to deny that the greatest thing in the world to me at the moment has been to get back on my feet no matter how wobbly they are and I do reach out to those of you that can’t do that as I really do understand now.
But, I also want to reach out to those of you that have been in the same situation as me, that if not for family and friends I would have been stuck in hospital for 4 weeks to sort out a wheel chair, 6 weeks to get a rail down my stairs, that was meant to have happened 3 years ago and the reason I fell. 5 weeks to get any care assistance.
Sorry I hate being down, I always crawled well.
But for me the bottom line is I am on my feet and I will push it as much as I can.
If any of you are going through any of this and do want some help I am open as I think I have spoken to everyone so I guess I know what to do.
Oh and for B I am making a fruit cake tomorrow!